Visual Snow Warrior of the Week – Sara Parrilla

Visual Snow Warrior of the Week – Sara Parrilla

Spotlight on: Sara Parrilla 🌱 “My name is Sara and I come from Spain. I am 33 years old and I’ve been experiencing VS ever since I was 14. For me, depersonalization and visual snow made their appearance together. I remember I was just sitting on the couch...
Visual Snow Warrior of the Week – Matt Clifton

Visual Snow Warrior of the Week – Matt Clifton

Spotlight on: Matt Clifton 💪 @mattclifff “Hello everyone! My name is Matt and I’m working towards a Masters Degree in Economics. I firmly believe I had a mild case of VSS my entire life but medication made the symptoms worse. When I first discovered the visual snow...
Visual Snow Warrior of the Week – Mehran Akbari

Visual Snow Warrior of the Week – Mehran Akbari

Spotlight on: Mehran Akbari 〰 @mehraanakbarii “Hi my name is Mehran Akbari I am 20 years old and here is my personal experience of VSS: I have had tinnitus since I was born, I always hearing ringing sounds in silence, and I thought that is normal and others were...
Visual Snow Warrior of the Week – Kevin Marcaida

Visual Snow Warrior of the Week – Kevin Marcaida

Spotlight on: Kevin Marcaida 💪 “Hello, my name is Kevin Marcaida. I’m a Neuroscientist at Imperial College London and Investor in Biotech and Pharmaceuticals. My story started in 2019 on a trip to NYC. Before the onset, I experienced severe jetlag from the 8-hour...
Visual Snow Warrior of the Week – Mike Ruggiero

Visual Snow Warrior of the Week – Mike Ruggiero

Spotlight on: Mike Ruggiero ⚡️@mrug003 “Hi everyone! I’m Mike, I’ve been living with VSS for almost exactly a year, while continuing work as a healthcare professional. At 6 months old I had craniosynostosis surgery in which my head had to be cut open. As a result, I...

Stay Informed!

Join our mailing list to receive the latest news and updates from the Visual Snow Initiative team! We'll include information about Visual Snow research, strategies to spread awareness, and upcoming events.

You have Successfully Subscribed!

“Ten years ago, in 2012, we presented work at a neurology meeting systematically describing why Visual Snow was not simply migraine aura and was a distinct disease entity. This was not received with universal acclaim, to say the least. In the intervening period, visual snow has come in from the medical ‘cold’ and is being studied actively by a number of groups on three continents. The recognition of the condition, broadening education, and funding research would not have happened were it not for the Visual Snow Initiative. I realize to the many with this often very disabling condition that it seems nothing has or is being done. Progress to treatment is never fast enough nor advances to recognition and understanding. With that said, visual snow research would be idling in a backwater where it not the Initiative. Going forward, we need to double, re-double, and re-double again our efforts for the search for effective treatments and, one day, a cure. Thank you for the Visual Snow Initiative for all you have done and continue to do.”

— Peter Goadsby, MD, PhD, DSc, Professor of Neurology, UCLA, Awarded 2021 Brain Prize

Donate Today

You have Successfully Subscribed!