From the Experts

I felt privileged and honored to be at this first, and historic, Visual Snow meeting. There was optimism, energy and comradery in the air; I know we will build on this experience to make a difference.

Dr. Peter Goadsby
Professor of Neurology, King’s College London


Attending the conference was an invaluable experience for me. It allowed me to connect with colleagues and Visual Snow sufferers in a manner that stimulated new ideas for collaborations and a better understanding of the depth of suffering experienced by people with Visual Snow.

Victoria Susan Pelak, M.D.
Professor of Neurology and Ophthalmology


It was a tremendous privilege to participate in the VSC, and to meet so many incredible individuals collectively committed to unraveling the mystery that is Visual Snow giving hope to the countless number of suffers of this poorly understood disorder.

Associate Professor Joanne Fielding
Head, Ocular Motor Research Unit

It was a privilege to attend the conference. It was valuable at several levels but the most significant impression was the poignancy hearing at first hand the difficulties confronted by the patients, not only in regard to their disorders but, more significantly, their experience with the medical profession.

Professor Owen B White MD PhD FRACP


The first-ever Visual Snow conference was both tremendously educational and inspirational. It was a great honor to share the stage with some of the top visual snow experts in the world!

Matthew Renze
Data Science Consultant, Author and International Speaker


It was a pleasure and a privilege to meet so many of those affected by Visual Snow. Their comments and detailed observations add to our knowledge about the disease…The important thing is to learn more about the medical aspects of visual snow and at the same time establish a more cohesive group that can support raising money for research

James T. Fulton
Vision Concepts/Director of Research

The VSC was the most important first step in increasing awareness and finding solutions to Visual Snow. I felt that I learned so much at the conference and gained further clarity and direction as a physician who sees these patients and tries to manage them.

I also gained further insight that the Visual Snow Initiative is a team effort and will be a team effort going forward…We still have a long ways to go but we are heading in the right direction!

Yasser Khan MD, FRCSC
Oculoplastic, Orbital and Ophthalmic Surgery


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Let’s start working together to spread awareness and education for the medical community and those dealing with Visual Snow! Once this is firmly established, then we can move forward towards a cure!

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We have released a new video! Feel free to share with family, friends, and doctors. Thank you!

To all the people who have Visual Snow that have been marginalized and/or have had trouble explaining what Visual Snow is to their friends, family, and doctors, this short video is for you. The traditional explanation of our condition is often lengthy, complex, and scary, but it doesn’t have to be.

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