From the Experts:

The Visual Snow Conference

 

I felt privileged and honored to be at this first, and historic, Visual Snow meeting. There was optimism, energy and comradery in the air; I know we will build on this experience to make a difference.

Dr. Peter Goadsby
Professor of Neurology, David Geffen School of Medicine, UCLA

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Attending the conference was an invaluable experience for me. It allowed me to connect with colleagues and Visual Snow sufferers in a manner that stimulated new ideas for collaborations and a better understanding of the depth of suffering experienced by people with Visual Snow.

Victoria Susan Pelak, MD
Professor of Neurology and Ophthalmology, Division of neuro-ophthalmology, university of colorado denver school of medicine

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It was a tremendous privilege to participate in the VSC, and to meet so many incredible individuals collectively committed to unraveling the mystery that is Visual Snow giving hope to the countless number of suffers of this poorly understood disorder.

Associate Professor Joanne Fielding
Head, Ocular Motor Research Unit, Department of neuroscience, monash university, melbourne, austrailia

It was a privilege to attend the conference. It was valuable at several levels but the most significant impression was the poignancy hearing at first hand the difficulties confronted by the patients, not only in regard to their disorders but, more significantly, their experience with the medical profession.

Professor Owen B. White, MD PhD FRACP
Neuro-Ophthalmologist, Department of Neuroscience, Central Clinical School, Monash University, Melbourne, Australia

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The first-ever Visual Snow conference was both tremendously educational and inspirational. It was a great honor to share the stage with some of the top visual snow experts in the world!

Matthew Renze
Data Science Consultant, Author and International Speaker

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It was a pleasure and a privilege to meet so many of those affected by Visual Snow. Their comments and detailed observations add to our knowledge about the disease…The important thing is to learn more about the medical aspects of visual snow and at the same time establish a more cohesive group that can support raising money for research

James T. Fulton
Vision Concepts/Director of Research

The VSC was the most important first step in increasing awareness and finding solutions to Visual Snow. I felt that I learned so much at the conference and gained further clarity and direction as a physician who sees these patients and tries to manage them.

I also gained further insight that the Visual Snow Initiative is a team effort and will be a team effort going forward…We still have a long ways to go but we are heading in the right direction!

Yasser Khan MD, FRCSC
Oculoplastic, Orbital and OphthalmiC Surgery

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“Ten years ago, in 2012, we presented work at a neurology meeting systematically describing why Visual Snow was not simply migraine aura and was a distinct disease entity. This was not received with universal acclaim, to say the least. In the intervening period, visual snow has come in from the medical ‘cold’ and is being studied actively by a number of groups on three continents. The recognition of the condition, broadening education, and funding research would not have happened were it not for the Visual Snow Initiative. I realize to the many with this often very disabling condition that it seems nothing has or is being done. Progress to treatment is never fast enough nor advances to recognition and understanding. With that said, visual snow research would be idling in a backwater where it not the Initiative. Going forward, we need to double, re-double, and re-double again our efforts for the search for effective treatments and, one day, a cure. Thank you for the Visual Snow Initiative for all you have done and continue to do.”

— Peter Goadsby, MD, PhD, DSc, Professor of Neurology, UCLA, Awarded 2021 Brain Prize

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