Visual Snow Initiative
Collaborate, Educate and Cure
Visual Snow is a neurological condition that impacts an individual’s vision, hearing, and quality of life. It affects a patient’s vision 24/7. That means that there is no relief from it, even when they close their eyes. Our goal is to help those with Visual Snow live and enjoy their lives without fear. Together we will find a cure.
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Help us fund research to find a cure for Visual Snow
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Fundraising
VSI Raises $140,000 For Visual Snow Research At Monash University
VSI Raises $140,000 For Visual Snow Research At Monash University
VSI Raises $100,000 For Visual Snow Research At Kings College London
VSI Raises $100,000 For Visual Snow Research At Kings College London
VSI Raises $125,000 For Visual Snow Research At University of Colorado
VSI Raises $125,000 For Visual Snow Research At University of Colorado
The Cure Of Understanding
The Visual Snow Initiative is an extension of The Visual Snow Conference held May 5th 2018 at UCSF. The Visual Snow Conference was established to shine a light on Visual Snow by raising awareness and understanding for those whose lives are directly affected by this condition. The conference film will be available this summer for free on the Visual Snow Conference website.
Visual Snow News
Visual Snow Initiative Raises $140,000 For Visual Snow Research At Monash University
Dr. Owen White, Dr. Joanne Fielding and colleagues, Melbourne, Australia Phenomenal work! You did it! The VSI Crowdrise campaign for Visual Snow research resulted in donations from around the world. The Visual Snow Initiative team matched your donations and we are so...
Visual Snow Initiative Raises $100,000 For Visual Snow Research At King’s College London
Dr. Peter Goadsby and colleagues, London, England Fantastic job! You did it! Our Crowdrise campaign for Visual Snow research resulted in donations from around the world. The Visual Snow Initiative team matched your donations. In a recent press release, Dr. Goadsby...
Visual Snow Researchers Seeking Volunteers
Two major Visual Snow researchers are seeking volunteers to participate in upcoming studies. The testing will be done at King’s College and Monash University. For further information please contact them directly utilizing the email links below. Monash University is...
Why We Do It
The Visual Snow Initiative is an extension of The Visual Snow Conference held May 5th 2018 at UCSF. The Visual Snow Conference was established to shine a light on Visual Snow by raising awareness and understanding for those whose lives are directly affected by this condition.
Visual Snow sounds like it’s harmless, but it is not. It affects people of all ages, but mostly young people in their teens and 20’s. Their eyes are perfect but their world looks far different. Without warning or cause, people with Visual Snow see the world in an overlay of hundreds of tiny moving dots across their field of vision, as well as other disturbing images.
Nobody knows the cause. The images are a 24/7 battle with the eyes open or closed. Research indicates that Visual Snow is a neurological problem, meaning the problem originates in the brain, not the eyes. This would explain why eye tests come back normal for patients with Visual Snow and why it is so difficult for doctors to diagnose.
We need awareness and knowledge to replace unnecessary medical tests. Visual Snow can be traumatic and isolating. We are working on understanding the condition and finding a cure.
What we see in our world we often take for granted…those with Visual Snow cannot.
