Visual Snow Initiative
Collaborate, Educate, and Cure
Visual Snow is a neurological condition that impacts an individual’s vision, hearing, and quality of life. It affects a patient’s vision 24/7. That means that there is no relief from it, even when they close their eyes. Our goal is to help those with Visual Snow live and enjoy their lives without fear. Together we will find a cure.
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Help us fund research to find a cure for Visual Snow
Learn
Learn more about how Visual Snow impacts lives
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Help raise awareness and support for Visual Snow
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About Us
The Cure Of Understanding
The Visual Snow Initiative is an extension of The Visual Snow Conference held May 5th 2018 at UCSF. The Visual Snow Conference was established to shine a light on Visual Snow by raising awareness and understanding for those whose lives are directly affected by this condition. The conference film will be available this summer for free on the Visual Snow Conference website.
Updates
Visual Snow News
Aaron Carter Supports Visual Snow Initiative
Aaron Carter meets with Sierra Domb, Founder of the Visual Snow Initiative, and helps film Public Service Announcements to raise awareness about Visual Snow. The Visual Snow Initiative was hosted by The Artists Project in Los Angeles, CA.
AnnaLynne McCord Raises Awareness For Visual Snow Conference
AnnaLynne McCord joins the Visual Snow Initiative in raising awareness for the Visual Snow condition. While joining the team at The Artists Project in Los Angeles, CA she joined other celebrities and recorded Public Service Announcements to help raise...
Tommy Davidson Joins The Effort To Support Visual Snow Initiative
Tommy Davidson takes time to support the Visual Snow Initiative in raising awareness about the devastating neurological condition. Davidson's efforts will help the Visual Snow Initiative spread the word about the condition in hopes of one day finding a...
Purpose
Why We Do It
The Visual Snow Initiative is an extension of The Visual Snow Conference held May 5th 2018 at UCSF. The Visual Snow Conference was established to shine a light on Visual Snow by raising awareness and understanding for those whose lives are directly affected by this condition.
Visual Snow sounds like it’s harmless, but it is not. It affects people of all ages, but mostly young people in their teens and 20’s. Their eyes are perfect but their world looks far different. Without warning or cause, people with Visual Snow see the world in an overlay of hundreds of tiny moving dots across their field of vision, as well as other disturbing images.
Nobody knows the cause. The images are a 24/7 battle with the eyes open or closed. Research indicates that Visual Snow is a neurological problem, meaning the problem originates in the brain, not the eyes. This would explain why eye tests come back normal for patients with Visual Snow and why it is so difficult for doctors to diagnose.
We need awareness and knowledge to replace unnecessary medical tests. Visual Snow can be traumatic and isolating. We are working on understanding the condition and finding a cure.
What we see in our world we often take for granted…those with Visual Snow cannot.
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“I was determined not to let Visual Snow stifle my ambition. I did not want this circumstance to turn me into a person I wasn’t.”
Sierra Domb, Founder
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Help Raise Awareness
Let’s start working together to build awareness and education for the medical community and those dealing with Visual Snow. Then and only then can we move forward towards a cure.
