These inspiring individuals with Visual Snow Syndrome have shared their experiences and how they manage its symptoms.
Visual Snow Warrior of the Week – Denisa Oprea
Meet our #WarriorOfTheWeek, Denisa! ✨
Visual Snow Warrior of the Week – Leslie Gastelum
Introducing Leslie, our #WarriorOfTheWeek! ????
Visual Snow Warrior of the Week – Rajat Sharma
Meet our #WarriorOfTheWeek, Rajat! ????
Visual Snow Warrior of the Week – Austin John Doody
Introducing our #WarriorOfTheWeek, Austin! ????
Visual Snow Warrior of the Week – Angie Keizer
Meet our awesome #WarriorOfTheWeek, Angie! ⚡️
Visual Snow Warrior of the Week – Zarina Medina
Introducing Zarina, our #WarriorOfTheWeek! ☀️
Visual Snow Warrior of the Week – Joanna Sofou
Introducing Joanna, our #WarriorOfTheWeek! ⚡️
Visual Snow Warrior of the Week – Daniel Sobek
Introducing Daniel, our #WarriorOfTheWeek! ⚡️
Visual Snow Warrior of the Week – James Baker
Meet our next #WarriorOfTheWeek, James! ????
Visual Snow Warrior of the Week – Diana Vargas
Meet Diana, our #WarriorOfTheWeek! ????
Share Your Story
The Visual Snow Initiative highlights the experiences of individuals of all ages worldwide who have Visual Snow Syndrome.
You Are All Our Superheroes!
We’d love to hear about your adventure with VSS — your story might help another kid out there!
Latest Research Articles
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Visual Snow Initiative Founder, Sierra Domb, Interviewed by Bold Journey Magazine
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Assessment of a novel patient reported outcome measure for visual snow syndrome: the Colorado visual snow survey 2.0
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Visual Snow Syndrome and Migraine with Aura: Insights from New Research on Distinct Migraine Types
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Dr. Alexander Baldwin Awarded CIHR Grant for Visual Snow Syndrome Research with Support from Visual Snow Initiative
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Exploring the Phenotype and Possible Mechanisms of Palinopsia in Visual Snow Syndrome
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Visual Snow Initiative Roundtable: Global Visual Snow Syndrome Experts Unite to Discuss Ongoing Research Findings, Explore Potential Treatments, and Build Resources for VSS
Support VSS Research Today
Every donation to the Visual Snow Initiative funds critical Visual Snow Syndrome (VSS) research. Your tax-deductible contribution drives global research efforts and creates a meaningful impact on the lives of those affected by VSS.