These inspiring individuals with Visual Snow Syndrome have shared their experiences and how they manage its symptoms.
Visual Snow Warrior of the Week – Paris Haigh
Introducing Paris, our #WarriorOfTheWeek! ✨ Hear her #VisualSnow story...
Visual Snow Warrior of the Week – Sanchit Bembi
Meet our #WarriorOfTheWeek, Sanchit! ????????
Visual Snow Warrior of the Week – Liz Brent-Maldonado
Introducing Liz, our next #WarriorOfTheWeek! Hear her journey on how she discovered the term for her “sparkle vision” and what…
Visual Snow Warrior of the Week – Darren Mooten
Meet Darren, our next #WarriorOfTheWeek, & hear his #VSS story! ????
Visual Snow Warrior of the Week – İpek Ebru Karataş
Introducing our next #WarriorOfTheWeek, Ipek! Hear her story on how changing her perspective on living life with #VisualSnow has helped…
Visual Snow Warrior of the Week – Vivien Wendel
Meet Vivien, our first #WarriorOfTheWeek of 2021! Hear about how she found out she had #VisualSnow and what it’s like…
Visual Snow Warrior of the Week – Catherine Webber
Introducing Catherine, our strong and inspiring #WarriorOfTheWeek! ✨
Visual Snow Warriors of the Week – Marko Filipovic
Meet our #WarriorOfTheWeek, Marko! ?
Visual Snow Warrior of the Week – Jeeten Patel
Spotlight on: Jeeten Patel ? @jeetenp03
Visual Snow Warrior of the Week – Mary Beony
Spotlight on: Mary Beony ? @marybeony
Share Your Story
The Visual Snow Initiative highlights the experiences of individuals of all ages worldwide who have Visual Snow Syndrome.
You Are All Our Superheroes!
We’d love to hear about your adventure with VSS — your story might help another kid out there!
Latest Research Articles
-
Sierra Domb on the Challenges of Advocacy, Managing Chronic Illness, and Life Lessons
-
Sierra Domb on Advocacy, Raising Awareness, and Founding the Visual Snow Initiative
-
Resolution of Visual Snow Syndrome Symptoms Through NeuroOptometric Rehabilitation, Chromatic Filters, and Syntonic Phototherapy: A Case Report
-
The Visual Snow Initiative (VSI) is excited to announce a new video series featuring Dr. Carrie (Beth) Robertson!
-
Sierra Domb on Her Personal Journey with Multiple Chronic Conditions: Visual Snow Syndrome, Erythromelalgia & Autoimmune Dysregulation
-
Serotonin reuptake inhibiting antidepressants: A trigger for visual snow syndrome?
Support VSS Research Today
Every donation to the Visual Snow Initiative funds critical Visual Snow Syndrome (VSS) research. Your tax-deductible contribution drives global research efforts and creates a meaningful impact on the lives of those affected by VSS.