These inspiring individuals with Visual Snow Syndrome have shared their experiences and how they manage its symptoms.
Visual Snow Warrior of the Week – Chloe Karabas
Introducing Chloe, our #WarriorOfTheWeek! Hear how she learned to use a positive attitude to her advantage by using it to…
Visual Snow Warrior of the Week – Jessica Ryan
Meet our next #WarriorOfTheWeek! Hear how Jessica first discovered she had #VisualSnowSyndrome and how, despite her struggles, she began to…
Visual Snow Warrior of the Week – Carlo Picar
Introducing our #WarriorOfTheWeek, Carlo! Learn his story on how he developed his #VisualSnow, and how he uses photography and video…
Visual Snow Warrior of the Week – Jese Navaranjan
Meet our next #WarriorOfTheWeek! Hear Jese describe how she was able to finally put a name to her condition and…
Visual Snow Warrior of the Week – Leon Bachner
Meet our #WarriorOfTheWeek, Leon! Hear his inspiring story on how he first developed #VS symptoms and how he chose (and…
Visual Snow Warrior of the Week – Lauren Brown
Introducing our next #WarriorOfTheWeek! Hear how Laurel first found out about her condition, how it allowed her to invent an…
Visual Snow Warrior of the Week – Dustin Richardson
Meet our next #WarriorOfTheWeek! Hear about how Dustin came to learn more about his condition and how he uses his…
Visual Snow Warrior of the Week – Lucia Spaans
Meet our next #WarriorOfTheWeek and hear how Lucia learned to adapt to having #VisualSnow while her fighter mentality encouraged her…
Visual Snow Warrior of the Week – Mary Lee Evelyn Keeney
Introducing our next #WarriorOfTheWeek! Learn how Mary uses her #VS as inspiration using photography to capture beautiful self-portraits. ?
Visual Snow Warrior of the Week – Angelina Cubero
Meet our fifth #WarriorOfTheWeek and hear Angelina’s inspiring story about how she manages to push through despite her #VSS and…
Share Your Story
The Visual Snow Initiative highlights the experiences of individuals of all ages worldwide who have Visual Snow Syndrome.
You Are All Our Superheroes!
We’d love to hear about your adventure with VSS — your story might help another kid out there!
Latest Research Articles
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Bestselling Author Samantha Shannon Shares Her Experience with Visual Snow Syndrome
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Dating and Relationships with Visual Snow Syndrome: VSS-Friendly Date Ideas and Experiences
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Visual Snow Initiative Educates Future Ophthalmologists on Visual Snow Syndrome at University of Montreal
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Visual Snow Initiative Founder, Sierra Domb, Featured in Global Genes
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Altered functional connectivity strength between structurally and functionally affected brain regions in visual snow syndrome
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AnCan Special Guest: Dr. Paula Hechinger
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