These inspiring individuals with Visual Snow Syndrome have shared their experiences and how they manage its symptoms.
Visual Snow Warrior of the Week – Rick Nowlin
Meet our fourth #WarriorOfTheWeek and hear how Rick learned to approach life with #VisualSnow differently and continue to do what…
Visual Snow Warrior of the Week – Kelsey Flint
Meet our third #WarriorOfTheWeek and learn how Kelsey first found out about her Visual Snow as a symptom of another…
Visual Snow Warrior of the Week – Yuri Fontouri
Meet our second #WarriorOfTheWeek and hear about how Yuri discovered his condition and learned to adapt and live life stronger than ever…
Visual Snow Warrior of the Week – Mary Payton
Meet our first #WarriorOfTheWeek and learn about how Mary’s medical condition empowers her to create beautiful works of art! ??
Share Your Story
The Visual Snow Initiative highlights the experiences of individuals of all ages worldwide who have Visual Snow Syndrome.
You Are All Our Superheroes!
We’d love to hear about your adventure with VSS — your story might help another kid out there!
Latest Research Articles
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Bestselling Author Samantha Shannon Shares Her Experience with Visual Snow Syndrome
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Dating and Relationships with Visual Snow Syndrome: VSS-Friendly Date Ideas and Experiences
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Visual Snow Initiative Educates Future Ophthalmologists on Visual Snow Syndrome at University of Montreal
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Visual Snow Initiative Founder, Sierra Domb, Featured in Global Genes
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Altered functional connectivity strength between structurally and functionally affected brain regions in visual snow syndrome
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AnCan Special Guest: Dr. Paula Hechinger
Support VSS Research Today
Every donation to the Visual Snow Initiative funds critical Visual Snow Syndrome (VSS) research. Your tax-deductible contribution drives global research efforts and creates a meaningful impact on the lives of those affected by VSS.