These inspiring individuals with Visual Snow Syndrome have shared their experiences and how they manage its symptoms.
Sunni
When I was a child, I’d look up at the ceiling on my sleepless nights and see millions of tiny…
Ludovic Beghin
I developed visual snow more than one year ago, out of nowhere. Never really understood what triggered it, which was…
Alexander Wark Feeney
I’ve been dealing with visual snow my whole life. Growing up, I would get scolded for squinting to see things…
Nirali Patel
Up until 2020, life had been proceeding without any significant hitches. Then, the world was thrust into the challenges brought…
Leah
Hi, I’m Leah and I’m 33. I’ve had mild visual snow (I learned from this website that it would be…
Shay Walsh
Meet our #Warriorsoftheweek, Shay Walsh💙 Spotlight on: Shay Walsh First of all, I can’t believe that I can actually tell…
James Janik
I’ve had visual snow for about 5 years. Like most stories I hear, I had a very sudden onset of…
Catherine Colgan
Hi! My name is Catherine Colgan. I’m an emergency department nurse. I am officially three months into my VSS onset,…
Katharina Werner
Meet our #WarriorOfTheWeek, Katharina Werner Spotlight on: Katharina Werner I first experienced my visual snow symptoms at the end of…
Erika sivc
Meet our #Warrioroftheweek, Erika Sivc💙 Spotlight on: Erika My symptoms started abruptly in the summer of 2022, unbeknownst to me…
Share Your Story
The Visual Snow Initiative highlights the experiences of individuals of all ages worldwide who have Visual Snow Syndrome.
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We’d love to hear about your adventure with VSS — your story might help another kid out there!
Latest Research Articles
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Twins with Visual Snow Syndrome: A Case Report in Poland
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She Saw the Wind: A Beautiful Novel from Visual Snow Patient Bruna Dolan
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Visual Snow Initiative Founder, Sierra Domb, Featured in The Mighty
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TMS-evoked phosphenes and oculomotor responses in Visual Snow Syndrome
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Turning invisible illness into visible change: Sierra Domb’s story of advocacy living with Visual Snow Syndrome
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Visual Snow Syndrome: Surgery Preparation, Considerations, and Supporting Recovery
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