Meet Our

Warrior of the Week

These inspiring individuals with Visual Snow Syndrome are sharing their experiences living with this condition and how they try their best to overcome its symptoms everyday.

Spotlight on:

Amanda Danis

Meet our #Warrioroftheweek, Amanda 💙

Spotlight on: Amanda


My name is Amanda, and I am 40 years old. I have lived with Visual Snow and its symptoms for as long as I can remember, since I was about 5 years old.

When I was young, I was very scared of the dark, mainly because of the snow in my vision. My mind would make out figures within it, especially at night, which made it hard for me to sleep, and I didn’t understand what was going on.

I only came to know that the ringing in my ears and visual snow were not normal when I was around 35 years old. Until then, I thought that’s what everyone saw and heard. I thought it was normal.

Once I finally understood what Visual Snow was and how it affected me, I was able to start connecting the dots. I could finally see the link between all the symptoms, as I had been treating them as separate issues.

In a way, I feel lucky because I have had this disorder for a long time, which has enabled me to find ways to live with Visual Snow. I have learned how to go about my day without it being my main focus. However, I still hope that one day I can experience life with clear vision and hearing, as I still don’t know what that is like.

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