Introducing Jennifer, our #WarriorOfTheWeek! ❤️

Spotlight on: Jennifer Traver 🌟

“I’ve had VSS for over 20 years! I first noticed the static back in high school, about a year after my migraines. Numerous physicians looked at me with confusion and told me I had eye strain. An MRI revealed a Chiari I malformation, but I was told that was not the culprit of my VSS. Since then I’ve had many visual and non-visual symptoms, including flare ups. The longest flare up, during graduate school, lasted 3 months in which I could barely read and didn’t leave my home. Thankfully the static returned to its usual annoyance and I finished through the struggles with a 4.0. I would love to share a few notes…

1) It’s helpful to keep a daily journal. Include what you’ve eaten, activities you engaged in, your stress level, etc. This can help you determine triggers that can worsen your visual snow.

2) Be prepared to educate others (including doctors). I often get “But, you look fine” To which I answer …“That’s funny, because you look pixelated“. It helps to have a sense of humor.

3) You may have to change the way you go about your daily life, but continue to find joy in new activities. I started playing with watercolors- where it’s OK to be blurry.

4) I work in early childhood education and VSS has helped me become a better educator. Early childhood is all about individualization and scaffolding children’s learning based on learning styles. I certainly know what it’s like to look at things from a different perspective and clearly understand that not all struggles are visible!

I am cautiously optimistic that a treatment will become available in the years to come. In the meantime, supporting each other through this initiative and offering encouragement in times of darkness is a treatment in and of itself.”

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New Visual Snow Syndrome Study!

The VSI has been working with Dr. Tsang in California and Dr. Shidlofsky in Texas. Both doctors have been highly successful in reducing, and in some cases, eliminating symptoms of Visual Snow Syndrome in their patients. When we learned that their philosophies and methods were strikingly similar and effective, the VSI put them in contact with each other. They are now collaborating on an enhanced VSS protocol. They will be accepting new patients for this study.

Today, the VSI will be releasing a series of informational videos on our YouTube channel in which Dr. Tsang and Dr. Shidlofsky discuss their experience in treating VSS. The VSI will also post video testimonials from their patients. We are enthusiastic and optimistic to share Dr. Tsang’s and Dr. Shidlofsky’s insights with the VSS community. If you would like to make an appointment with either Dr. Tsang or Dr. Shidlofsky, their contact information will appear at the end of each video. Watch the videos here:

We recognize that the majority of people with VSS cannot travel to California or Texas to take part in this study. Therefore, once the study has concluded, Dr. Tsang and Dr. Shidlofsky have agreed to make a series of instructional videos that will show their step-by-step protocol, which can be done at home. They will offer suggestions and techniques that will allow the use of household items versus in-office medical equipment. The VSI will also make these videos available.

We would like to thank Dr. Tsang, Dr. Shidlofsky, Kelsey NaPier, and Michael Neustifter for their kind and generous contribution to the VSS community.

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