#WarriorOfTheWeek Spotlight on: Kristy Versteeg ❤️

“Hey guys, my name’s Kristy & I’m a 24-year-old Dutchie! I’ve had VSS from an early age, I’m not entirely sure but I must’ve been between 4-6 years old when it appeared. I remember the static all of a sudden started & it freaked me out so much I took a wet towel & tried to clean my eyeballs. I was terrified to go blind, but still walked around w/ it for years without seeing a doctor. It probably sounds stupid, but I thought doctors would confirm my own diagnosis leaving me w/ no room for denial anymore. When I was in college I decided to face my fears & take medical steps anyway. However, my general practitioner, an optician & an eye specialist declared my eyes to be healthy. I carried on often wondering if anyone else saw the halos, flickering blue sky, & floating circles during a sunny day. It was last year when I decided to Google my symptoms one last time that all of a sudden VSS showed up.

I immediately took action & went through the medical steps: eyes healthy, MRI clean (often the case w/ VSS). My neurologist still didn’t want to officially label me w/ VSS, as it’s in such a “developing stage” (sigh). However, I do consider myself diagnosed & it gives me mixed feelings. Of course my fears have reduced (even though some of it’s so deeply rooted into my system it’s hard to get rid of), but at the same time I now also officially know this isn’t normal. My VSS, in combination w/ tinnitus, is something “normal” people don’t have to deal w/ & sometimes is hard to realize. I’m going through a stressful phase in my life & it immediately reflects on my vision, but I’ve established a relief mechanism for myself. In case I (really) freak out, I go for a run. In case my vision is actively bothering me, I go for a walk.

In case I feel the stress in my body causing my symptoms to worsen, I do some yoga or meditation. To conclude my story: don’t be afraid to take medical action & try to figure out what works for you!”

Stay Informed!

Join our mailing list to receive the latest news and updates from the Visual Snow Initiative team! We'll include information about Visual Snow research, strategies to spread awareness, and upcoming events.

You have Successfully Subscribed!

VSI Founder Sierra Domb and Dr. Peter Goadsby Join Tinnitus Hub Podcast

Many who have #VisualSnowSyndrome also have #Tinnitus. We collaborated with the good people at Tinnitus Hub on this podcast where #VSI Founder Sierra Domb and neurologist Dr. Peter Goadsby talk about their experiences in trying to push the envelope for #VisualSnow sufferers as well as the analogies between the two conditions.

Listen To The Podcast!

You have Successfully Subscribed!