#WarriorOfTheWeek Spotlight on: Kristy Versteeg ❤️

“Hey guys, my name’s Kristy & I’m a 24-year-old Dutchie! I’ve had VSS from an early age, I’m not entirely sure but I must’ve been between 4-6 years old when it appeared. I remember the static all of a sudden started & it freaked me out so much I took a wet towel & tried to clean my eyeballs. I was terrified to go blind, but still walked around w/ it for years without seeing a doctor. It probably sounds stupid, but I thought doctors would confirm my own diagnosis leaving me w/ no room for denial anymore. When I was in college I decided to face my fears & take medical steps anyway. However, my general practitioner, an optician & an eye specialist declared my eyes to be healthy. I carried on often wondering if anyone else saw the halos, flickering blue sky, & floating circles during a sunny day. It was last year when I decided to Google my symptoms one last time that all of a sudden VSS showed up.

I immediately took action & went through the medical steps: eyes healthy, MRI clean (often the case w/ VSS). My neurologist still didn’t want to officially label me w/ VSS, as it’s in such a “developing stage” (sigh). However, I do consider myself diagnosed & it gives me mixed feelings. Of course my fears have reduced (even though some of it’s so deeply rooted into my system it’s hard to get rid of), but at the same time I now also officially know this isn’t normal. My VSS, in combination w/ tinnitus, is something “normal” people don’t have to deal w/ & sometimes is hard to realize. I’m going through a stressful phase in my life & it immediately reflects on my vision, but I’ve established a relief mechanism for myself. In case I (really) freak out, I go for a run. In case my vision is actively bothering me, I go for a walk.

In case I feel the stress in my body causing my symptoms to worsen, I do some yoga or meditation. To conclude my story: don’t be afraid to take medical action & try to figure out what works for you!”

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New Visual Snow Syndrome Study!

The VSI has been working with Dr. Tsang in California and Dr. Shidlofsky in Texas. Both doctors have been highly successful in reducing, and in some cases, eliminating symptoms of Visual Snow Syndrome in their patients. When we learned that their philosophies and methods were strikingly similar and effective, the VSI put them in contact with each other. They are now collaborating on an enhanced VSS protocol. They will be accepting new patients for this study.

Today, the VSI will be releasing a series of informational videos on our YouTube channel in which Dr. Tsang and Dr. Shidlofsky discuss their experience in treating VSS. The VSI will also post video testimonials from their patients. We are enthusiastic and optimistic to share Dr. Tsang’s and Dr. Shidlofsky’s insights with the VSS community. If you would like to make an appointment with either Dr. Tsang or Dr. Shidlofsky, their contact information will appear at the end of each video. Watch the videos here: http://bit.ly/VSIYouTube.

We recognize that the majority of people with VSS cannot travel to California or Texas to take part in this study. Therefore, once the study has concluded, Dr. Tsang and Dr. Shidlofsky have agreed to make a series of instructional videos that will show their step-by-step protocol, which can be done at home. They will offer suggestions and techniques that will allow the use of household items versus in-office medical equipment. The VSI will also make these videos available.

We would like to thank Dr. Tsang, Dr. Shidlofsky, Kelsey NaPier, and Michael Neustifter for their kind and generous contribution to the VSS community.

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