Spotlight on: Gonzalo Wosner 💪 @gzwosner

“Hello, greetings to all. My name is Gonzalo Wosner, I am 22 years old and I live in Buenos Aires, Argentina.

I have been aware of visual snow in my life since the beginning of this year. I have myopia and astigmatism and I wear glasses usually, and I thought the problem was that my vision was not as good as I wanted. Over time I became worried and suddenly I could describe the feeling of what I really saw and without a doubt it was described as “snow” or “television static.” I commented to my friends and they thought I was crazy, but they really cannot imagine how much my quality of life diminishes with my deteriorated vision. I went to different ophthalmologists, they told me that I could have scintillating synchysis, which I can distinguish is really different from what actually happens to me. Also, I was offended that in a clinic they told me that they were only floaters, giving signs that thorough awareness and research work needs to be done.

Thank you for this initiative, I hope you can help many more people. I am happy knowing that there are people who are going through the same difficulty, & we are here to support each other.”

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“Ten years ago, in 2012, we presented work at a neurology meeting systematically describing why Visual Snow was not simply migraine aura and was a distinct disease entity. This was not received with universal acclaim, to say the least. In the intervening period, visual snow has come in from the medical ‘cold’ and is being studied actively by a number of groups on three continents. The recognition of the condition, broadening education, and funding research would not have happened were it not for the Visual Snow Initiative. I realize to the many with this often very disabling condition that it seems nothing has or is being done. Progress to treatment is never fast enough nor advances to recognition and understanding. With that said, visual snow research would be idling in a backwater where it not the Initiative. Going forward, we need to double, re-double, and re-double again our efforts for the search for effective treatments and, one day, a cure. Thank you for the Visual Snow Initiative for all you have done and continue to do.”

— Peter Goadsby, MD, PhD, DSc, Professor of Neurology, UCLA, Awarded 2021 Brain Prize

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