Spotlight on: Jackie Jacoby 〰 @gently__used

“Hi VSS family! I’m Jackie and I’m 27 years old. In December 2019 I got off of a plane and felt the ground moving underneath me. For the next 11 months, I had dizziness & vertigo, nerve pain, pressure in my ears, hearing loss, disassociation, weight loss, and sensory distortions like audio-visual delays, “twinkles” in my vision, and floaters. I went from being highly active to completely immobile.

I flew to a hospital in Chicago and was diagnosed with VSS. I then met with neurologist & VSS expert Dr. Peter Goadsby, who created a treatment plan. He also helped me understand the non-visual symptoms of VSS – there are a lot!

Now, I can do more than I ever thought possible. I go climbing, hiking, camping, and dancing. The best part – I can drive again!

To anyone struggling with VSS – you’re not alone, and it does get better. Having a solid support system is key, and do your best to create healthy habits: get lots of sleep, eat leafy greens, buy a solid eye mask, and stop smoking if you do. Last but not least, find a doctor who can recognize the symptoms of this rare disease. You can do it!”

Stay Informed!

Join our mailing list to receive the latest news and updates from the Visual Snow Initiative team! We'll include information about Visual Snow research, strategies to spread awareness, and upcoming events.

You have Successfully Subscribed!

Q&A Video Series with VSI Founder

New Videos Every Wednesday

Watch Now

You have Successfully Subscribed!