Spotlight on: Joanna Sofou

“Hello, My name is Joanna and I’m 29 years old. I started losing my vision 2 years ago. I couldn’t really explain how I see. I would say I see it like when the TV is out of signal and there is snow everywhere but colorful. Or I see like there’s glitter everywhere. That happens even when my eyes are closed 24/7. That’s my main symptom right now and the past few months, when it started it was way worse. I work as a server and I couldn’t see the screens on the computers. I couldn’t see my phone. I couldn’t see people’s faces. I couldn’t cross the streets. I was terrified. My life changed from one day to another.

I visited plenty of doctors, specialists, neurologists, neurofthalmologists, had a lot of testing and MRIs, and nobody can figure out what’s going on with my eyes. I would leave a doctor’s office crying every time. I was thinking I might be crazy, and then I found your [VSI’s] page. I saw people having the same symptoms as me and that I’m not alone in this.

I still don’t know if that’s my case although I’m pretty sure it is after I saw your posts. The past 5 years weren’t easy for me so I don’t know if this happened to me from stress or sadness. I go to bed every day with the hope that I’m gonna wake up and see normally and with the fear that it’s going to get worse. I hope you can find an answer to all these so you can help me and people like me to get our vision back to normal one day.”

Stay Informed!

Join our mailing list to receive the latest news and updates from the Visual Snow Initiative team! We'll include information about Visual Snow research, strategies to spread awareness, and upcoming events.

You have Successfully Subscribed!

In Case You Missed It!

The VSI Virtual Summit 2022

Our team invites you to learn about the Tsang/Shidlofsky Visual Snow Protocol and the latest advancements in treating Visual Snow Syndrome in this free virtual event.

Agenda For VSI Summit:

  • Visual Snow Syndrome - A Look Back
  • Symptoms in Review
  • Meet Dr. Terry Tsang and Dr. Charles Shidlofsky
  • A message from Sierra Domb, the Founder of the Visual Snow Initiative
  • The Visual Snow Study
  • The Results
  • The Treatment Protocol
  • Your Questions Answered
  • Patient Testimonials
Watch The Summit

You have Successfully Subscribed!