Hear from our strong #WarriorOfTheWeek, Julia, & her inspiring #VSS story. 🎶

Spotlight on: Julia Poetain 🎻

“Hi friends, my name’s Julia Poetain. I’m 26 years old & have been dealing w/ the progression of my self-diagnosed VSS for 5 years. My symptoms started in 2014 on a family trip to the beach when I noticed spots in the sky from the airplane window. Since then, I’ve experienced every known symptom to VSS. When it started to progress, I was in music school working towards my degree in violin performance. It became harder for my eyes to adjust when looking from conductor back to my music on the stand during rehearsals.

As a musician, my eyes play a huge role in learning & performing music, so I became petrified & extremely depressed. I’ve always had 20/20 vision so I was confused why my eyes were declining. I was afraid of potential blindness & felt depressed. Not to mention the dizziness, nausea, flashing lights, hazy vision, & headaches that became worse w/ school stress. Not one doctor believed me or knew what I was talking about. Still to this day I have not met a doctor who has any clue – this NEEDS to change!

I’m an admin by day & professional violinist during evenings & weekends. Static vision & floaters are most challenging for me. I wear anti-blue light glasses while working to avoid migraine. Other ways I cope are through meditation, exercise, eating well, getting enough sleep, & leaning on support from my family/friends. I’ve learned to accept this new reality & use my experience to deepen my compassion for others. VSS is a silent battle & is not a disability that’s visible. Some days are easier than others!

A big part of staying positive is following other people’s journeys w/ VSS & knowing there are others like me out there fighting the same fight. Any of you who needs someone to talk to, my inbox will always be open! Thank you to VSI for bringing us together as a supportive community & hopefully one day find a cure. Much love to you all!”

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Introducing The Visual Imagery Project

The Visual Snow Initiative is excited to announce the release of the Visual Imagery Project (VIP), a 21-day online protocol designed to reduce visual snow symptoms via custom created visual imagery. Those who would like to participate can register now and begin your 21 day protocol. To begin, click here: visualsnowproject.com.

  • In order to get the full benefit of the Visual Imagery Project, we encourage you to watch both video tutorials.
  • Only desktops and laptops can be used for the VIP.
  • Only Google Chrome and Firefox browsers will work with the VIP.
  • These browsers are available for download free of charge on the VIP’s homepage.
  • The VIP’s protocol is 21 days and each session is approximately 30 minutes per day.
  • Each day, before beginning the viewing session, you will need to complete a Progress Evaluation. The information you provide will be saved daily in order to track your progress.
  • Due to the size of the visual imagery files used in the VIP, a strong WiFi connection is required. If you experience any technical difficulties with the Visual Imagery Project (VIP), please email us at info@visualsnowinitiative.org

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