Spotlight on: Karen Murakami

Hello, I’m Karen(かれん) from Japan (japan Emoji). 

About 2 years ago, I got this condition while pregnant. When I woke up in the morning, I suddenly lost sight in my right eye. My vision gradually returned, but I could see dust storms and strange patterns for 24 hours.

I had various examinations at 12 hospitals, but nothing was wrong (MRI, CT, optic nerve and EEG). I was sad and frustrated every time, especially when some doctors blamed me for my persistent questions while I simply wanted to know what kind of disease I contracted.  

Looking back now , I just wanted a diagnosis, but I finally got a VSS diagnosis 2 years ago. I despaired, but I found myself there!

I want to help people who are having the same problem and I hope no one gets this condition anymore 

I wanna sing a song that can save everyone someday🤍 

I’ll be in japan 🤍

Stay Informed!

Join our mailing list to receive the latest news and updates from the Visual Snow Initiative team! We'll include information about Visual Snow research, strategies to spread awareness, and upcoming events.

You have Successfully Subscribed!

What is Visual Snow? Transforming Anguish into Action

Just Released

What is Visual Snow? Transforming Anguish into Action

Sierra Domb | TEDx Talk

Watch Now

You have Successfully Subscribed!