Spotlight on: Mehran Akbari 〰 @mehraanakbarii

“Hi my name is Mehran Akbari I am 20 years old and here is my personal experience of VSS: I have had tinnitus since I was born, I always hearing ringing sounds in silence, and I thought that is normal and others were hearing the same sound, I do not remember whether I had VSS at that time or not because my VSS is very mild and I usually ignore them. When I was about 11, I paid attention to the dots like static in my night vision and I guessed something went wrong with my vision, but I did not know how to explain this to my family.
Since I was 13 I have been seeing floaters in my field of vision, since then, my attention to the phenomena that I see has increased. I went to an ophthalmologist who told me that I have BFEP. Early on, I suffered a lot from floaters and BFEP, but after a while I got used to them and ignored them.
Until a few days ago, I came once to research about dots I see in darkness or low light situations and after researching, I realized I have very mild VSS, and when I realized VSS and Tinnitus are related to each other, I was shocked. I did not think at all that the sound I hear in my head in silence is not normal.
Anyway, VSS and Tinnitus are normal for me because I was born with them and they are part of my vision and hearing. I realized that not everyone is the same as me and I have a rare syndrome called Visual Snow Syndrome.”

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