#VisualSnowCommunity, meet our awesome #WarriorOfTheWeek, Urmika! Hear about Urmika’s determination and her inspiring fight to stay strong despite having #VSS. ?

Spotlight on: Urmika Tripathi ?✨

“I have had visual snow since I was in 8th grade. For me, the most difficult part of having this disease is the lack of awareness and the absolute absence of acknowledgement of this condition by the several doctors that I have seen in the past 10-12 years in India. For a large part of my life, I thought these symptoms were not real and I was imagining it. In addition to the visual snow, I also have very high myopia and weak vision in my left eye. Severe palinopsia, extremely high sensitivity to light, tinnitus and frequent aura migraine attacks had made it extremely difficult to do day to day activities and lead a normal life. However, growing up, I was determined to not let this condition affect my life. While there may not be a cure for this condition yet, I strongly believe that determination and support from family and friends can help one adapt to live a good quality of life despite VS. Another thing that I have personally experienced is that your body learns to adapt to this condition with time and while it may seem very difficult at first, hang in there, because you are bound to be better equipped to deal with this condition with every day that passes. With time, I found it easier and easier to be able to focus and not get distracted by the various symptoms that come along with VS. Tinted glasses and sunglasses have also been helpful in providing relief from various symptoms (especially photophobia).

Discovering VSI, reading about so many other people who are suffering from the same condition and finding out about the efforts that are going into finding a cure for this condition has further inspired me to not let this condition take over my life.”

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In addition to VSI research currently underway in London, Colorado, Texas and California, the VSI is also raising money for VSS via a worldwide auction. You can find out more about the auction here, www.VSIauction.com. VSS research results will be posted on our website as they become available. Thank you.

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