Meet our #WarriorOfTheWeek, April! Hear her #VSS story. 🌟

Spotlight on: April G. ♥️

“My name’s April & I developed VSS at 26 years old coming up on a year in June. It started the same time as other health issues & I wasn’t aware it wasn’t all related to the VS since there’s so little known about it, especially by the doctors I was seeing. I found a FB group & others like me, & started putting the pieces together. I’ve spent all of my time in & out of hospitals & specialists. I officially got a diagnosis in September of 2019 via neuro-ophthalmologist.

My health has declined or a new symptom has popped up every month since. I haven’t gone a day without intense pain & pressure in my head & neck for a year. I developed tmj, POTS-like symptoms, chronic fatigue, chest pains, tinnitus, light sensitivity, & IBS at the same time. It’s been the hardest year of my life & still don’t have a diagnosis besides VS, but now I’m on the road to seeing a neurosurgeon. It’s been overwhelming to have this all hit at once.

I take it ten seconds at a time. I spent a lot of time researching & talking to others trying to find answers & relief. I went from terror & derealization when I first developed it, constant panic attacks, too afraid to leave my house or drive, to hardly thinking about it at all (except right when I wake up & it’s extra awful…haha). CBD helped me a ton & kept me off anxiety medications. I recommend practicing mindfulness, meditation, going to therapy if you can, holding yourself to a routine, massage, breathing exercises, chanting to ground yourself. Also sunglasses & light blocking computer glasses are a must! I hold on tight to my loved ones, my cat, do things I love when I can, like doing makeup, cooking, flipping furniture, sewing, macrame & playing video games. I still work full time for a software company doing medical data entry. If you’re new to VS & feel like your world is crumbling, please know you won’t feel like this forever. Sending you all love.”

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New Visual Snow Syndrome Study!

The VSI has been working with Dr. Tsang in California and Dr. Shidlofsky in Texas. Both doctors have been highly successful in reducing, and in some cases, eliminating symptoms of Visual Snow Syndrome in their patients. When we learned that their philosophies and methods were strikingly similar and effective, the VSI put them in contact with each other. They are now collaborating on an enhanced VSS protocol. They will be accepting new patients for this study.

Today, the VSI will be releasing a series of informational videos on our YouTube channel in which Dr. Tsang and Dr. Shidlofsky discuss their experience in treating VSS. The VSI will also post video testimonials from their patients. We are enthusiastic and optimistic to share Dr. Tsang’s and Dr. Shidlofsky’s insights with the VSS community. If you would like to make an appointment with either Dr. Tsang or Dr. Shidlofsky, their contact information will appear at the end of each video. Watch the videos here:

We recognize that the majority of people with VSS cannot travel to California or Texas to take part in this study. Therefore, once the study has concluded, Dr. Tsang and Dr. Shidlofsky have agreed to make a series of instructional videos that will show their step-by-step protocol, which can be done at home. They will offer suggestions and techniques that will allow the use of household items versus in-office medical equipment. The VSI will also make these videos available.

We would like to thank Dr. Tsang, Dr. Shidlofsky, Kelsey NaPier, and Michael Neustifter for their kind and generous contribution to the VSS community.

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