Introducing Stella, our #WarriorOfTheWeek! Hear how getting a diagnosis has helped her realize she isn’t alone. ?

Spotlight on: Stella Mares ? @_stellamares

“Heya, my name is Stella, I’m 16 years old and have had Visual Snow for around 2 years. I don’t remember exactly how and when it started, but remember it scared the hell out of me. I remember I told my parents that the walls shimmered when I looked at them, but of course they had no idea what I was talking about. For almost 2 years I was convinced I was going blind, and that my sight was deteriorating, and it felt like I was fading from existence. I never mentioned it to anyone again, and I was in a dark place for a long time. This year I developed a thyroid problem which made my anxiety unbearable and I finally told my parents about what I was seeing. I went to my gp who sent me to an optometrist and everything came back normal. I was then referred to an opthamologist, who very luckily knew exactly what I was talking about and immediately diagnosed me with Visual Snow, and told me about the Visual Snow Initiative. On the way home from the ophthalmologist I found the VSI website and watched everyone’s amazing stories and nearly cried from the happiness and relief that I wasn’t alone!

Since getting the diagnosis I’ve felt as though a weight has been lifted. Just knowing what was wrong with me and knowing I wasn’t going blind has been incredible. My VS symptoms are a constant grainy shimmer, floaters and some negative after images. Since getting the diagnosis I notice them so much less and when I do I try to see the beauty in it. Sometimes it even feels like a superpower to see things that no one else can. To anyone who is still at the beginning of their journey, I promise you it will get better, and you might even come to see the beauty in it! We are all in this together ❤️”

Stay Informed!

Join our mailing list to receive the latest news and updates from the Visual Snow Initiative team! We'll include information about Visual Snow research, strategies to spread awareness, and upcoming events.

You have Successfully Subscribed!

VSI Founder Sierra Domb and Dr. Peter Goadsby Join Tinnitus Hub Podcast

Many who have #VisualSnowSyndrome also have #Tinnitus. We collaborated with the good people at Tinnitus Hub on this podcast where #VSI Founder Sierra Domb and neurologist Dr. Peter Goadsby talk about their experiences in trying to push the envelope for #VisualSnow sufferers as well as the analogies between the two conditions.

Listen To The Podcast!

You have Successfully Subscribed!