Introducing Stella, our #WarriorOfTheWeek! Hear how getting a diagnosis has helped her realize she isn’t alone. 💖

Spotlight on: Stella Mares 💌 @_stellamares

“Heya, my name is Stella, I’m 16 years old and have had Visual Snow for around 2 years. I don’t remember exactly how and when it started, but remember it scared the hell out of me. I remember I told my parents that the walls shimmered when I looked at them, but of course they had no idea what I was talking about. For almost 2 years I was convinced I was going blind, and that my sight was deteriorating, and it felt like I was fading from existence. I never mentioned it to anyone again, and I was in a dark place for a long time. This year I developed a thyroid problem which made my anxiety unbearable and I finally told my parents about what I was seeing. I went to my gp who sent me to an optometrist and everything came back normal. I was then referred to an opthamologist, who very luckily knew exactly what I was talking about and immediately diagnosed me with Visual Snow, and told me about the Visual Snow Initiative. On the way home from the ophthalmologist I found the VSI website and watched everyone’s amazing stories and nearly cried from the happiness and relief that I wasn’t alone!

Since getting the diagnosis I’ve felt as though a weight has been lifted. Just knowing what was wrong with me and knowing I wasn’t going blind has been incredible. My VS symptoms are a constant grainy shimmer, floaters and some negative after images. Since getting the diagnosis I notice them so much less and when I do I try to see the beauty in it. Sometimes it even feels like a superpower to see things that no one else can. To anyone who is still at the beginning of their journey, I promise you it will get better, and you might even come to see the beauty in it! We are all in this together ❤️”

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New Visual Snow Syndrome Study!

The VSI has been working with Dr. Tsang in California and Dr. Shidlofsky in Texas. Both doctors have been highly successful in reducing, and in some cases, eliminating symptoms of Visual Snow Syndrome in their patients. When we learned that their philosophies and methods were strikingly similar and effective, the VSI put them in contact with each other. They are now collaborating on an enhanced VSS protocol. They will be accepting new patients for this study.

Today, the VSI will be releasing a series of informational videos on our YouTube channel in which Dr. Tsang and Dr. Shidlofsky discuss their experience in treating VSS. The VSI will also post video testimonials from their patients. We are enthusiastic and optimistic to share Dr. Tsang’s and Dr. Shidlofsky’s insights with the VSS community. If you would like to make an appointment with either Dr. Tsang or Dr. Shidlofsky, their contact information will appear at the end of each video. Watch the videos here: http://bit.ly/VSIYouTube.

We recognize that the majority of people with VSS cannot travel to California or Texas to take part in this study. Therefore, once the study has concluded, Dr. Tsang and Dr. Shidlofsky have agreed to make a series of instructional videos that will show their step-by-step protocol, which can be done at home. They will offer suggestions and techniques that will allow the use of household items versus in-office medical equipment. The VSI will also make these videos available.

We would like to thank Dr. Tsang, Dr. Shidlofsky, Kelsey NaPier, and Michael Neustifter for their kind and generous contribution to the VSS community.

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