The Visual Snow Conference

In 2015, Sierra Domb began experiencing the onset of Visual Snow Syndrome (VSS), a challenging neurological condition that affects an estimated 2-3% of the population. As she sought a correct diagnosis, she faced a troubling lack of recognition for her condition and limited resources for those impacted by VSS. Realizing that many others around the world were experiencing similar struggles, including being misdiagnosed and overlooked, Sierra founded the Visual Snow Initiative to help create meaningful solutions.

Organized by Sierra Domb and the VSI team, one of their earliest efforts was the establishment of the first-ever Visual Snow Conference. Held on May 5th, 2018, at the University of California, San Francisco (UCSF), Sierra and her team hosted a free summit that brought together individuals affected by VSS, their loved ones, and experts from around the world. Doctors, researchers, and scientists with expertise in VSS traveled from Australia, Canada, England, and various cities across the United States. Alongside Sierra, they offered acknowledgment and validation to patients and their families. The event aimed to raise awareness, share the current body of research, provide education, offer resources, and foster a deeper understanding of VSS.

All of the videos from the 2018 Visual Snow Conference are available to watch below. ↓