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Sierra Domb Announces Historic ICD Milestone for Visual Snow Syndrome

The Visual Snow Initiative (VSI) has successfully completed the final phase of its mission to secure the first-ever ICD codes for both Visual Snow Syndrome (the neurological condition) and Visual Snow (the hallmark visual symptom involving persistent static). Our Founder, Sierra Domb, has collaborated with Dr. Peter Goadsby and Dr. Owen White to include VSS in the latest edition of the International Classification of Diseases (ICD-11), maintained by the World Health Organization (WHO).

Visual Snow Initiative & Oxford Mindfulness: Establishing Global Access to MBCT for Visual Snow Syndrome

Join Sierra Domb, Founder of the Visual Snow Initiative (VSI), as she discusses VSIโ€™s collaboration with the Oxford Mindfulness Foundation (OMF). This partnership brings together insights from renowned neurologists, neuro-ophthalmologists, and VSS researchers Dr. Sui Wong and Dr. Owen White. VSI and OMF have launched a free, evidence-based Mindfulness-Based Cognitive Therapy (MBCT) module, grounded in scientific research and specifically designed for individuals with Visual Snow Syndrome (VSS), now available in 170 countries via the Oxford Mindfulness App.

Sierra Domb Shares VSI Updates on Visual Snow Syndrome

Sierra Domb, Founder of the Visual Snow Initiative (VSI), presents the latest updates on Visual Snow Syndrome (VSS), including:

  • A new medication study

  • Ongoing global research collaborations

  • Insights from leading experts

  • Supportive and educational resources

  • Advocacy initiatives

  • Additional news and developments

VSI Videos

Visual Snow Syndrome TEDx Talk:
What is Visual Snow?
Transforming Anguish into Action

Visual Snow Syndrome activist and Founder of the Visual Snow Initiative (VSI), Sierra Domb, shares her journey of founding a groundbreaking research foundation. After experiencing the symptoms of Visual Snow Syndrome herself, Sierra became a passionate advocate, determined to assist others affected by the condition. Driven by a commitment to empower others facing adversity, she introduced innovative approaches to create a meaningful impact for millions worldwide.

2025 Visual Snow Q&A
Dr. Owen White

This must-watch series explores the origins of Visual Snow Syndrome (VSS), brain imaging, hereditary links, symptom management, emerging treatments, and efforts to secure an official ICD code.

Dr. Owen White, a global leader in VSS research, continues to advance understanding through his work with the Visual Snow Initiative.

New Video Series featuring
Vanessa Mora & Mehrad Mazaheri, Directors of VSI:
VSI 4 Kids Launch and Q&A

Dr. Peter Goadsby Answers Your Questions

2 Videos

Living with Visual Snow Syndrome:
Eric Hiltonโ€™s Journey & Search for Relief

Eric Hilton, a U.S. veteran and former Special Operations Medic, has lived with Visual Snow Syndrome (VSS) for over 20 years following a traumatic brain injury caused by an IED blast.

With limited resources available, Eric has faced ongoing visual static, sensory disturbances, and cognitive challenges that deeply impact his daily life. In this video, Eric travels from Maine to Texas to pursue Neuro-Optometric Rehabilitation Therapy (NORT), a 12-week treatment option tailored to his VSS symptoms and medical history. 

Watch as Eric shares his honest experience living with this multifaceted neurological conditionโ€”and his hope for progress.

VSI New Video Series featuring
Dr. Peter Goadsby

In this Visual Snow Initiative (VSI) video series, Dr. Peter Goadsby explores various topics related to Visual Snow Syndrome, including upcoming studies, brain imaging, his views on current research and treatment options, and his collaboration with VSI and Founder Sierra Domb. He offers expert insights and shares his personal perspectives on the condition.

VSI Video Series featuring
Dr. Leanna Dudley

In this Visual Snow Initiative (VSI) video series, learn about Dr. Leanne Dudleyโ€™s experience in diagnosing and treating Visual Snow Syndrome. She discusses the methods she uses, her success rate, insights on the VSS patient population, and her perspective on treatments, research, vision therapy, neuro-optometry, and more. Additionally, Dr. Dudleyโ€™s patient, Brianna Albrecht, shares her personal journey with VSS and experience with treatment.

VSI Video Series featuring
Dr. Christoph Schankin and Dr. Antonia Klein

In this Visual Snow Initiative (VSI) video series, Dr. Schankin and Dr. Klein explore a range of topics, including Visual Snow Syndrome, their upcoming study, and their collaboration with VSI. They offer expert analysis and share their unique perspectives on the condition.

VSI Video Series featuring
Dr. Francesca Puledda

In this Visual Snow Initiative (VSI) video series, discover Dr. Francesca Puleddaโ€™s expertise on Visual Snow Syndrome. As a Neurologist and post-doctoral researcher in the headache group at Kingโ€™s College London, Dr. Puledda brings a wealth of knowledge from her background, including her MD from Sapienza University of Rome and her Neurology specialization. Learn about her research and the latest insights on the neurological mechanisms underlying VSS.

VSI Video Series featuring
Dr. Barry Tannen

In this Visual Snow Initiative (VSI) video series, learn about various aspects of Visual Snow Syndrome from Dr. Tannen, an optometric physician with over 30 years of experience at EyeCare Professionals. His clinical and research focus includes visual deficits related to concussion, acquired brain injury, strabismus, amblyopia, and learning-related vision problems. Dr. Tannen also supervises a Residency in Vision Therapy and Rehabilitation at EyeCare Professionals.

VSI Website Walkthrough

This detailed video guide is designed to help you navigate the information and resources related to Visual Snow Syndrome (VSS), the Visual Snow Initiative (VSI), and more, all available on our website.

If you need assistance navigating our website or are looking for specific information, we recommend viewing this tutorial for guidance.

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Every donation to the Visual Snow Initiative funds critical Visual Snow Syndrome (VSS) research. Your tax-deductible contribution drives global research efforts and creates a meaningful impact on the lives of those affected by VSS.