Everyone at VSI has a personal or professional connection to Visual Snow Syndrome. Whether they live with VSS, support someone affected by VSS, have a personal connection to the condition, or advance research, awareness, and care, each person is driven by a desire to help.
Our collaborators are clinicians, researchers, and professionals who believe in our mission and share their expertise. VSI’s core team is made up of volunteers and members who self-fund VSI’s day-to-day internal efforts and dedicate their time because they care about making a difference. All donations VSI receives go directly to VSS research.
Meet the Researchers
The Visual Snow Initiative (VSI) collaborates with leading experts on Visual Snow Syndrome (VSS) and fosters global connections to strengthen research and accelerate progress.
Our Global Research Team comprises physicians, scientists, and researchers worldwide who focus on investigating VSS, identifying evidence-based treatments, and working toward a cure. Their work spans symptomatology, pathophysiology, brain network mechanisms, neurotransmitters, biomarkers, and a wide range of potential treatment options. Expertise covers neurology, neuro-ophthalmology, ophthalmology, optometry, neuroscience, neurobiology, and advanced technology.
Your generous contribution directly supports this global collaboration, advancing research, deepening understanding, and developing solutions for VSS. As research progresses, VSI’s team simultaneously builds international partnerships, raises awareness among public and medical communities, and creates multimodal educational resources designed to support both patients and medical professionals.
Dr. Peter Goadsby
Dr. Francesca Puledda
Dr. Christoph Schankin
Dr. Ed Boyden
Dr. Owen White
Dr. Victoria Pelak
Dr. Charles Shidlofsky
Dr. Barry Tannen
Dr. Sui Wong
Dr. Joanne Fielding
Dr. Mark Weatherall
Dr. Peter Gerhardstein
Sam Maione
Alex Baldwin
Makeda McKenzie
Dr. Osvaldo Gervasi
Anastasia Kononirova
Pyatkov Artem
Jennifer Steeves
Meet the VSI Team
VSI’s team has passionately upheld its mission to drive progress by collaborating with global researchers, developing essential resources, and contributing to groundbreaking studies. Through these efforts and advocacy, they have worked to deepen understanding, uncover new insights, enhance education, raise awareness, advance progress toward solutions, and achieve official medical and scientific recognition for VSS.
Paul Domb
Daisy Fernández
Marton Varo
Visual Snow Syndrome Support Group
Our Collaborators
Some of the institutions VSI has worked with include:
Massachusetts Institute of Technology
Monash University
Moorfields Eye Hospital NHS Foundation Trust
University of Bern
King’s College
University of California, Los Angeles
AnCan
University of Colorado
Imperial College
McGill University / Université McGill
NIHR National Institute for Health and Care Research
Binghamton University
The University of Sheffield
Support VSS Research Today
Every donation to the Visual Snow Initiative funds critical Visual Snow Syndrome (VSS) research. Your tax-deductible contribution drives global research efforts and creates a meaningful impact on the lives of those affected by VSS.