About Us

VSI: Our mission

Visual Snow Syndrome can be very difficult to diagnose, but it doesn’t have to be. Nearly everyone who suffers from the symptoms of this condition ends up making an appointment with an eye doctor. However, Visual Snow is not an issue with the structural integrity of the eyes; instead, it is the result of a processing glitch that originates in the brain. This neurological processing glitch results in the eyes seeing distorted images and other related symptoms. In order to find a cure for anything, you must first acknowledge it exists.

The Visual Snow Initiative (VSI) offers hope, resources, and the “Cure of Understanding” to those with Visual Snow Syndrome. After Visual Snow is diagnosed, its effects can be minimized and/or coped with. This allows patients to live their life with something they know about and understand rather than being subjected to years of testing for a variety of illnesses they simply do not have.

But it requires financial support to do the research. We are aligning ourselves with foundations, philanthropists, corporate sponsors, and individual donors to provide the money necessary for developing treatments and/or a cure. VSI is working with leading experts to fast track their research through a global collaboration.

We will be able to identify a cure for Visual Snow more quickly by funding research, encouraging collaboration, and raising awareness/education.

History

More About the Initiative

Who We Are

The Visual Snow Initiative (VSI) was founded by Sierra Domb, who struggled, as many do, to find answers. Sierra wanted to prevent others from having to endure unnecessary medical tests or feeling isolated and marginalized by their doctors. 

The Visual Snow Conference

One of the earliest efforts of the Visual Snow Initiative was the establishment of the Visual Snow Conference, a summit to gather those with Visual Snow Syndrome, raise awareness, and share the current body of research.

Global Cause

We have connected worldwide medical experts, researchers, and scientists. This allows them to collaborate while having access to advanced technologies.

Funding Research

Our focus is to ramp-up Visual Snow awareness and provide an increased availability of research capital through global funding.

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“Ten years ago, in 2012, we presented work at a neurology meeting systematically describing why Visual Snow was not simply migraine aura and was a distinct disease entity. This was not received with universal acclaim, to say the least. In the intervening period, visual snow has come in from the medical ‘cold’ and is being studied actively by a number of groups on three continents. The recognition of the condition, broadening education, and funding research would not have happened were it not for the Visual Snow Initiative. I realize to the many with this often very disabling condition that it seems nothing has or is being done. Progress to treatment is never fast enough nor advances to recognition and understanding. With that said, visual snow research would be idling in a backwater where it not the Initiative. Going forward, we need to double, re-double, and re-double again our efforts for the search for effective treatments and, one day, a cure. Thank you for the Visual Snow Initiative for all you have done and continue to do.”

— Peter Goadsby, MD, PhD, DSc, Professor of Neurology, UCLA, Awarded 2021 Brain Prize

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