About Us

VSI: Our Mission

Visual Snow Syndrome (VSS) can be very difficult to diagnose, but it doesn’t have to be. Nearly everyone who suffers from the symptoms of this condition ends up making an appointment with an eye doctor. However, VSS is not an issue with the structural integrity of the eyes; instead, it is the result of a processing error that originates in the brain. This neurological processing error results in the eyes seeing distorted images and other related symptoms. In order to find a cure for anything, you must first acknowledge it exists. This is why generating awareness, education, and funding for VSS research is imperative.

The Visual Snow Initiative (VSI) offers hope, resources, and the “Cure of Understanding” to those with Visual Snow Syndrome. After VSS is diagnosed, its effects can be minimized and/or coped with. This allows patients to live their life with something they know about and understand rather than being subjected to years of testing for a variety of illnesses they simply do not have.

But it requires financial support to do the research. We are aligning ourselves with foundations, philanthropists, corporate sponsors, and individual donors to provide the money necessary for developing treatments and/or a cure. VSI is working with leading experts to fast track their research through a global collaboration.

We will be able to identify a cure for Visual Snow Syndrome more quickly by funding research, encouraging collaboration, and raising awareness/education together.

History

About the Initiative

Who We Are

The Visual Snow Initiative (VSI) was founded by Sierra Domb, who struggled, as many do, to find answers. Sierra wanted to prevent others from having to endure unnecessary medical tests or feeling isolated and marginalized by their doctors. 

The Visual Snow Conference

One of the earliest efforts of the Visual Snow Initiative was the establishment of the Visual Snow Conference, a summit to gather those with Visual Snow Syndrome, raise awareness, and share the current body of research.

Global Cause

We have connected worldwide medical experts, researchers, and scientists. This allows them to collaborate while having access to advanced technologies.

Funding Research

Our focus is to ramp-up Visual Snow awareness and provide an increased availability of research capital through global funding.

Find Solutions

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What is Visual Snow? Transforming Anguish into Action

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What is Visual Snow? Transforming Anguish into Action

Sierra Domb | TEDx Talk

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