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Get Your Limited Edition Apparel
Act Now & Save 15%!
OUT NOW! Our second Limited Edition Apparel Fundraising Campaign has now LAUNCHED! 👜🧢 👕 Get a 15% discount if you order by March 9th. Help raise awareness for #VisualSnowSyndrome by rocking hoodies, t-shirts, hats, and tote bags! All merchandise comes in multiple colors, products, styles, and sizes. #SeeingIsBelieving 👁🧠💙 Get yours TODAY: shop.spreadshirt.com/visual-snow-initiative.
The cool part? Every purchase makes a difference as 100% of the proceeds from our campaign go DIRECTLY towards funding #VSS research for a cure. We’re so grateful for all our amazing supporters in the #VS community. We’re in this together!
Join the Fundraising Campaign!
It’s time to cure Visual Snow Syndrome once and for all! You can join the entire VSI team in our efforts to raise money and awareness for #VisualSnow. With your contribution, we can help thousands of people of all ages from around the world who have this condition.
Let’s rally the Visual Snow community to achieve visibility and funding for a cure.
Become a part of our fundraising efforts by going to our donation page and/or sharing it with your family and friends today!
Together, we can get much-needed answers and solutions. On behalf of all those who have Visual Snow, we’re so grateful for you help! You can truly make a difference.
Be a Part of the Solution
Help Fund Research Today!
Your donation, no matter the size, makes a big difference in the search for a cure. VSI’s focus is to raise awareness for Visual Snow Syndrome and provide an increased availability of research capital through global funding. We have partnered with experts around the world who are dedicated to helping our cause. Their fields of expertise include neuro-ophthalmology, ophthalmology, neuroscience, neurobiology, scientific research, and advanced technology. With your contribution, they gain the ability to collaborate on a global scale and work towards solutions that can help those suffering from this condition.
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I waited, hoping that (in the future) somebody would make changes to help people with VSS. I tried getting used to the look on people’s faces when I’d say the name of my condition: 🤔❓ I tried accepting the lack of awareness, research, and solutions. But the VSS community remained marginalized. I couldn’t sit by idly without doing my part anymore.
Not enough people knew about VSS and not enough was being done to learn more about it.
The task ahead was daunting. I wasn’t a neuroscientist. I had no idea about nonprofits, funding research, or raising awareness. I was starting entirely from scratch!
But it wasn’t impossible! By putting in the time/effort, I became educated and learned what it took. Thanks to some awesome people out there who also cared, we created something to help those with VSS that didn’t exist years ago! So many other VSS support groups/forums/communities have made impacts too! Now, there’s MORE awareness for VSS than ever before, global research teams, an international community, increased credibility/NORD recognition — progress that wasn’t there a few years ago.
You don’t have to wait for others to make the changes you want to see; if you want to see change, you can make it happen yourself.
Don’t be intimidated, especially when attempting something that’s never been done before in history. Things that are truly good or impactful seldom come easily. With time/effort, you can get there.
Even if it isn’t perfect, it’s better to try than to not try at all. No matter how big/small, progress made today is progress that wasn’t there yesterday. If there’s a problem, you don’t need to wait for someone else to fix it. Sometimes, you have to be your own hero.
Join the Cause Today
Support Research for a Cure!
Let’s work together to raise awareness and education for Visual Snow Syndrome within the medical community and amongst the public! Once both of these are firmly established, then we can get closer to solutions and importantly, a cure for those who need it most.
