Support Visual Snow Research
Your generous tax-deductible donation ensures we can continue to generate awareness, education, resources, patient advocacy, treatments, and research to help people affected by Visual Snow Syndrome worldwide.
Your contribution, no matter the size, can make a positive difference in the lives of people with Visual Snow Syndrome. For many, Visual Snow can be traumatic and isolating. It can be difficult for physicians to diagnose and more research is still needed to better understand this condition.
VSI’s team consists of Visual Snow experts and researchers from around the world who are dedicated to patient advocacy and finding solutions. Their fields of expertise include neurology, neuro-ophthalmology, ophthalmology, optometry neuroscience, neurobiology, and advanced technology.
With your contribution, we gain the ability to collaborate on a global scale and continue to produce new research and treatments that can help those suffering from Visual Snow Syndrome.
Share Your Story, Spread the Word
Sharing your story and spreading the word can help generate awareness, education, and interest in Visual Snow Syndrome. Importantly, it is also an opportunity to help and inspire others, including people with Visual Snow who can relate to you or medical professionals who benefit from hearing about your symptoms and experiences.
Methods:
- You can spread the word about Visual Snow and VSI or fundraise in your local community.
- You can also raise awareness online in a variety of ways. Social media is an excellent tool for connecting with people worldwide.
- You can also create and share your own Visual Snow-related content, such as personal stories, videos, artwork/photography, or other projects.
- Supporting VSI on social media ensures that we can continue our advocacy work and keep creating a variety of new VSS content. Following and tagging VSI, as well as reposting/sharing our posts helps spread the word. Thank you.
- For an opportunity to be featured on VSI’s website and social media, become our next Warrior of the Week or Creative Mind.
Shop to Support the Cause
VSI/Visual Snow shirts, hoodies, stickers, and more are available in our online store. They are offered in multiple styles, colors, and sizes (XS-4XL). You can also choose from our designs or customize your own. 100% of the Net Proceeds go directly towards funding Visual Snow research.
Study Participation
For more information on clinical trials involving Visual Snow, please visit ClinicalTrials.gov or ICH GCP.
Oftentimes, due to regulations (privacy & legal protection), participants for studies must be recruited via the institution or university that the researchers are affiliated with. Patients seen by physicians & researchers in-practice or in-person are often considered favorable candidates for studies. However, there are exceptions and researchers may notify the Visual Snow community when they are seeking participants for studies. They will inform you what information they need and what specific facets of VSS they are exploring via clinical trial databases, their website, and/or social media.
You can also reach out to VSS researchers if you would like to share information about your case that may be helpful to them. The names of many VSS researchers and physicians can be found on our website.
In addition to the databases above, we also share study participation opportunities and information related to VSI-funded/supported clinical trials and research studies via our website, newsletter, and social media.
The Visual Snow (VS) Worldwide Project
This project features images of people and places from around the world. The aim is to demonstrate the diverse, global impact of VSS and illustrate the significant contrast between life for those with VSS symptoms versus those without. Together, by sharing these images, we can increase awareness for VSS and create a world where individuals with VSS are better understood and supported.
