Get Involved

Join the Fundraising Campaign!

It’s time to #CureVisualSnow! Join Founder Sierra Domb and the entire Visual Snow Initiative in our fundraising campaign. Let’s rally the Visual Snow community to raise #VisualSnowAwareness and fund research for a cure.

Get involved with our fundraising effort today by going to our donation page or sharing it with friends. Together, we will find a cure!

Donate

Like Us on Facebook

Support

Help Fund the Cure

Your donation, no matter the size, helps make a difference in a search for a cure. VSI’s focus is to ramp up Visual Snow awareness and provide an increased availability of research capital through the creation of a global research fund. We have connected experts in neuro-ophthalmology, ophthalmology, neuroscience, neurobiology, leading research scientists, and the most advanced technologies available to collaborate on a international scale.

Subscribe

VSI on Facebook

Visual Snow Initiative
Visual Snow Initiative15 hours ago
Meet our next #WarriorOfTheWeek & hear how Lucia learned to adapt to having #VisualSnow while her fighter mentality encouraged her to never give up. 💪❤️

Spotlight on: Lucia Spaans ✨

"My name is Lucia, I’m 26 years old & from the Netherlands. I was born with this super rare eye condition called ‘Morning Glory Syndrome’. It never really bothered me growing up, but suddenly during my early 20s, I got some complications that required me to be in & out of the hospital. I had many scans & doctors seeing me. This was also the time I started to notice that I was seeing a lot of sparks in my sight & floaters everywhere. On top of that, I developed severe tinnitus. This was a very difficult time for me, because I was always feeling sick. All of that resulted in anxiety, which is actually not uncommon for people w/ VS. When my anxiety was highest, I would have a panic attack 2 or 3 times an hour. When I'd ask my eye doctors about the sparks I was seeing everywhere, the floaters, the tinnitus etc. they would all refer me to a psychologist. Thanks to Google, I had already ‘diagnosed' myself w/ VS, so I knew it wasn’t a mental issue. About 3 years & many doctors later, I was finally referred to a neurologist in Amsterdam who actually knew what VS was. He officially diagnosed me.

When my VS just started, I remember going to the beach, something I always loved to do, & being overwhelmed with sadness, thinking ‘I can’t ever look at the sea anymore and enjoy it, because the snow is everywhere’. This was more than 3 years ago, & I am enjoying the sea in summer as much as I can. For some reason, I simply learned to adapt to VS, & (w/ some help from my sunglasses) it doesn’t bother me anymore. My mentality has always been that of a fighter & I refuse to give up or not do what I want in life, because of my health issues. I am currently a business owner & doing great! To my fellow VS people, I would like to tell you that it can get better & life can be great again. Hang in there! "

#VisualSnow #VisualSnowAwareness #VisualSnowSupport #VS #VSS #VSI #VisualSnowInitiative #Awareness #Education #Support #Treatment #Cure #Heal #Hope #ChronicIllness #Spoonie #Charity #Nonprofit #Neurology #Symptoms #Brain #Science #Medicine #Eyes #Vision #Research

VSI on Instagram

Please enter an Access Token on the Instagram Feed plugin Settings page.

Join Us

Support the Research for a Cure

Let’s start working together to build awareness and education for the medical community and those dealing with Visual Snow! Then, we can move forward towards a cure! Let’s do it together!

Stay Up to Date with the Latest Updates and Event Info

Join our mailing list to receive the latest news and updates from the Visual Snow Initiative team! We'll include updates on Visual Snow research, strategies to spread awareness, and upcoming events.

 

You have Successfully Subscribed!

We have released a new video! Feel free to share with family, friends, and doctors. Thank you!

To all the people who have Visual Snow that have been marginalized and/or have had trouble explaining what Visual Snow is to their friends, family, and doctors, this short video is for you. The traditional explanation of our condition is often lengthy, complex, and scary, but it doesn’t have to be.

Watch Video

You have Successfully Subscribed!