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Join the Fundraising Campaign!
It’s time to #CureVisualSnow! Join Founder Sierra Domb and the entire Visual Snow Initiative in our fundraising campaign. Let’s rally the Visual Snow community to raise #VisualSnowAwareness and fund research for a cure.
Get involved with our fundraising effort today by going to our donation page or sharing it with friends. Together, we will find a cure!
Help Fund the Cure
Your donation, no matter the size, helps make a difference in a search for a cure. VSI’s focus is to ramp up Visual Snow awareness and provide an increased availability of research capital through the creation of a global research fund. We have connected experts in neuro-ophthalmology, ophthalmology, neuroscience, neurobiology, leading research scientists, and the most advanced technologies available to collaborate on a international scale.
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Spotlight on: Lucia Spaans ✨
"My name is Lucia, I’m 26 years old & from the Netherlands. I was born with this super rare eye condition called ‘Morning Glory Syndrome’. It never really bothered me growing up, but suddenly during my early 20s, I got some complications that required me to be in & out of the hospital. I had many scans & doctors seeing me. This was also the time I started to notice that I was seeing a lot of sparks in my sight & floaters everywhere. On top of that, I developed severe tinnitus. This was a very difficult time for me, because I was always feeling sick. All of that resulted in anxiety, which is actually not uncommon for people w/ VS. When my anxiety was highest, I would have a panic attack 2 or 3 times an hour. When I'd ask my eye doctors about the sparks I was seeing everywhere, the floaters, the tinnitus etc. they would all refer me to a psychologist. Thanks to Google, I had already ‘diagnosed' myself w/ VS, so I knew it wasn’t a mental issue. About 3 years & many doctors later, I was finally referred to a neurologist in Amsterdam who actually knew what VS was. He officially diagnosed me.
When my VS just started, I remember going to the beach, something I always loved to do, & being overwhelmed with sadness, thinking ‘I can’t ever look at the sea anymore and enjoy it, because the snow is everywhere’. This was more than 3 years ago, & I am enjoying the sea in summer as much as I can. For some reason, I simply learned to adapt to VS, & (w/ some help from my sunglasses) it doesn’t bother me anymore. My mentality has always been that of a fighter & I refuse to give up or not do what I want in life, because of my health issues. I am currently a business owner & doing great! To my fellow VS people, I would like to tell you that it can get better & life can be great again. Hang in there! "
#VisualSnow #VisualSnowAwareness #VisualSnowSupport #VS #VSS #VSI #VisualSnowInitiative #Awareness #Education #Support #Treatment #Cure #Heal #Hope #ChronicIllness #Spoonie #Charity #Nonprofit #Neurology #Symptoms #Brain #Science #Medicine #Eyes #Vision #Research
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Support the Research for a Cure
Let’s start working together to build awareness and education for the medical community and those dealing with Visual Snow! Then, we can move forward towards a cure! Let’s do it together!
