Help Drive Progress & Research for Visual Snow Syndrome
All donations to the Visual Snow Initiative (VSI) go directly to Visual Snow Syndrome (VSS) research.
Your generous, tax-deductible contribution helps ensure VSI’s global research efforts can continue and drives meaningful progress for individuals of all ages with VSS.
Thank you for making a difference.
There are many different ways to support the Visual Snow Initiative and help advance VSS awareness, education, and more. These can include sharing your story or VSS-related project or resources, contributing to research, organizing or participating in fundraising events, educating others about VSS, and other impactful methods. Details are provided below. ↓
VSI's Visual Snow Syndrome Research
The Visual Snow Initiative (VSI) collaborates with leading experts and fosters global partnerships to advance research on Visual Snow Syndrome (VSS) and work toward a cure.
VSI’s Global Research Team includes physicians, scientists, and researchers from around the world, exploring areas like symptomatology, pathophysiology, brain network mechanisms, neurotransmitters, biomarkers, and potential treatments.
VSI funds a variety of comprehensive scientific studies aimed at improving VSS understanding and management.
The insights gained from VSI-supported research drive long-term progress toward the ultimate goal of identifying a cure.
Take Part in Visual Snow Syndrome Research
To find clinical trials for Visual Snow Syndrome (VSS) and Visual Snow (VS), you can visit resources like ClinicalTrials.gov or ICH GCP for the latest information on ongoing studies.
In addition to these databases, VSI shares study participation opportunities and information on VSI-funded or supported research via our website (in the News & Research section), newsletter, and social media channels.
You can also reach out to VSS researchers if you’d like to share information about your case that may assist their work. Many VSS researchers and medical professionals are listed in our global Physicians & Specialists Directory.
For VSI-funded or supported studies, participation opportunities will be announced through VSI and affiliated institutions or universities. For other studies, researchers typically share opportunities through their own websites or social media.
Please note: The Visual Snow Initiative does not manage the enrollment or communication processes for studies. All study-related inquiries should be directed to the research team responsible for the specific study. For more details, see our FAQ page.
Share Your VSS Story and Help Raise Awareness
Sharing your story and spreading awareness can play a crucial role in increasing education and interest in Visual Snow Syndrome (VSS).
It is also a powerful way to connect with others facing similar challenges, offering support and inspiration to those who may feel isolated.
Additionally, health professionals benefit from hearing about your experiences, which enhances their understanding of VSS, advances research, and improves patient care.
Some of the ways you can help are outlined below.
Methods
- Help raise awareness for VSS and VSI's mission by talking to trusted family, friends, and local healthcare professionals in your community.
- You can also raise awareness for VSS online through various platforms, including social media, which is a powerful tool for connecting with people worldwide.
- Create and share your own VSS-related content, such as personal stories, videos, artwork, or other projects. (Tag VSI to share it with us.)
- Supporting VSI on social media allows us to keep creating and sharing VSS content and advancing advocacy.
- Following and tagging VSI, along with sharing or reposting our content, helps raise awareness. (Thank you for supporting us.)
- Consider educating others by sharing our VSS Brochure and the official VSS Diagnostic Criteria, both available on our website.
- Advocate for increased funding and support for VSS research and policies.
- For a chance to be featured on VSI’s website and social media, become our next Warrior of the Week or Creative Mind.
Support Advancements for VSS: For Medical Professionals & Researchers
For Doctors & Medical Professionals
The support and collaboration of the medical, scientific, and academic communities are crucial to advancing global progress in understanding and treating Visual Snow Syndrome (VSS). Your expertise and involvement can make a lasting impact on those affected by this condition.
If you are a doctor or qualified medical professional treating patients with Visual Snow Syndrome, we invite you to join our Global VSS Physicians Directory. This directory connects patients with healthcare professionals worldwide who are knowledgeable about VSS. Your participation helps ensure that patients can find doctors who understand their needs and access informed care to better manage their condition.
Created by VSI in collaboration with physicians and researchers, our VSS Diagnostic Criteria, VSS Brochure (available in multiple languages), VSS Patient Guide, and other resources on our website are valuable tools for use in healthcare facilities, offices, and practices.
For Researchers, Professors, & Students
If you are a researcher, professor, or student studying Visual Snow Syndrome, we welcome your involvement. VSI can support your efforts through study recruitment, collaboration, and amplifying your research to reach a wider audience. Together, we can expand knowledge and raise awareness of this condition.
Thank you for your dedication to advancing awareness, education, research, and patient care. Your participation is vital in creating a future where VSS is better recognized, understood, and effectively treated.
If you are interested, please contact us below.
Fundraising Events
Fundraising through event participation or organization is a powerful way to support Visual Snow Syndrome (VSS) research and make a significant impact.
Reach Out to VSI About Your Fundraising Idea
If you are interested in hosting or participating in an event to raise funds for VSS research or the Visual Snow Initiative, we greatly appreciate your support and involvement.
Please reach out to our team at [email protected] to discuss your fundraising efforts.
We look forward to exploring collaboration opportunities and determining how we can best support your event or campaign in support of VSS
Highlighting Your Impactful Fundraising Efforts
With your consent, we may showcase and celebrate your fundraising efforts on our website, in our newsletter, and across our social media platforms.
Methods
- Collaborate with VSI to organize educational workshops, seminars, or courses aimed at raising awareness and educating others about VSS.
- You can take part in fundraising events like charity walks, runs, marathons, or cycling events.
- Other fundraising event ideas include community gatherings, charity dinners, auctions, raffles, bake sales, or creative exhibitions such as art and music.
- Consider encouraging friends, family, and others to sponsor or join you in these fundraising efforts.
- Engage local businesses and community members to support and take part in your fundraising efforts.
- Inform us of your efforts so we can assist with your event or campaign and highlight your achievements.
Shop to Support the Cause
Explore our collection of Visual Snow Syndrome-themed shirts, hoodies, and more, available in a variety of styles, colors, and sizes (XS-4XL) in our online shop.
100% of the net proceeds support Visual Snow Syndrome research.
The Visual Snow (VS) Worldwide Project
The Visual Snow Initiative’s Visual Snow (VS) Worldwide Project showcases images from around the world, representing the global impact of Visual Snow Syndrome (VSS) and its primary symptoms, such as Visual Snow (VS) and palinopsia. This project highlights the contrast between the lives of those with VSS symptoms and those without, offering crucial representation of their different daily experiences. By sharing these images, you help raise awareness, enhance visibility, and foster a deeper understanding of what life with VSS entails.
VSI 4 Kids
VSI 4 Kids is the first-ever website and resource dedicated to pediatric Visual Snow Syndrome (VSS). A branch of the Visual Snow Initiative (VSI), VSI 4 Kids provides essential information, resources, and support for children and youth affected by VSS, including those who may not yet be aware they have it. For many kids, explaining VSS to friends, teachers, and parents can be challenging, often leading to feelings of isolation. VSI 4 Kids aims to change this by offering a friendly, accessible, and engaging platform where kids can learn about VSS and find the support they need.
Support VSS Research Today
Every donation to the Visual Snow Initiative funds critical Visual Snow Syndrome (VSS) research. Your tax-deductible contribution drives global research efforts and creates a meaningful impact on the lives of those affected by VSS.
