These inspiring individuals with Visual Snow Syndrome have shared their experiences and how they manage its symptoms.
Bruna Dolan
Hi, VSI team! I’m Bruna, an indie author from Brazil, and finding your profile on TikTok inspired me deeply. Seeing…
Paula Hechinger
In 2016, while I was pregnant, my life changed in a way I never expected. That was the year I…
Jenna Ballance
I first began noticing my symptoms in November of 2023. I’ll never forget the morning I woke up and my…
Nathan Do
Hello, my name is Nathan, and I’m 21 years old from Sydney, Australia. My journey with Visual Snow Syndrome (VSS)…
Heloísa Vieira Casatti
My name is Heloisa Vieira Casatti, and I am from the city of Araçatuba (São Paulo State), Brazil.I am 29…
Juan forteza
My name is Juan, and I’m from Spain—Mallorca, to be exact. I want to thank Sierra for her work and…
Celestial Jones
I have eyes like my mom. She used to like telling the story about how she came home from work…
Daniel O’Toole
Daniel O’Toole is an artist whose practice blends painting and sound, with a focus on perception and natural phenomena. Over…
Anna Milecki
Hello! I live in Chicago and am 27 years old. I realized I had visual snow after many days of…
Nwando Ebizie
Nwando Ebizie is a multidisciplinary artist who has spent years creating music, performances, and immersive art that reflect her unique…
Share Your Story
The Visual Snow Initiative highlights the experiences of individuals of all ages worldwide who have Visual Snow Syndrome.
You Are All Our Superheroes!
We’d love to hear about your adventure with VSS — your story might help another kid out there!
Latest Research Articles
-
Twins with Visual Snow Syndrome: A Case Report in Poland
-
She Saw the Wind: A Beautiful Novel from Visual Snow Patient Bruna Dolan
-
Visual Snow Initiative Founder, Sierra Domb, Featured in The Mighty
-
TMS-evoked phosphenes and oculomotor responses in Visual Snow Syndrome
-
Turning invisible illness into visible change: Sierra Domb’s story of advocacy living with Visual Snow Syndrome
-
Visual Snow Syndrome: Surgery Preparation, Considerations, and Supporting Recovery
Support VSS Research Today
Every donation to the Visual Snow Initiative funds critical Visual Snow Syndrome (VSS) research. Your tax-deductible contribution drives global research efforts and creates a meaningful impact on the lives of those affected by VSS.