These inspiring individuals with Visual Snow Syndrome have shared their experiences and how they manage its symptoms.
Juan forteza
My name is Juan, and I’m from Spain—Mallorca, to be exact. I want to thank Sierra for her work and…
Celestial Jones
I have eyes like my mom. She used to like telling the story about how she came home from work…
Daniel O’Toole
Daniel O’Toole is an artist whose practice blends painting and sound, with a focus on perception and natural phenomena. Over…
Anna Milecki
Hello! I live in Chicago and am 27 years old. I realized I had visual snow after many days of…
Nwando Ebizie
Nwando Ebizie is a multidisciplinary artist who has spent years creating music, performances, and immersive art that reflect her unique…
Mandana Omid Bakhtiari
Spotlight on: Mandana 💙 Hello! My name is Mandana Omidbakhtiyari, I’m 36 years old and I live in Glasgow, Scotland.…
Heather Rivera
Hello, my name is Heather, and I’d like to share my story. I recently discovered that I have Visual Snow…
Eedit Hämäläinen
Hello! My name is Eedit, I’m 19 years old and I live in Finland. I have suffered from VSS since…
Mikayla Corrie-Muller
I’m a 21-year-old university student living with Visual Snow Syndrome (VSS) and chronic migraines. My journey to discovering I had VSS started…
Jennifer Bell
I’ve experienced Visual Snow for as long as I can remember. The constant overlay of moving, colorful dots has been…
Share Your Story
The Visual Snow Initiative highlights the experiences of individuals of all ages worldwide who have Visual Snow Syndrome.
You Are All Our Superheroes!
We’d love to hear about your adventure with VSS — your story might help another kid out there!
Latest Research Articles
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Visual Snow Initiative Founder, Sierra Domb, Interviewed by Bold Journey Magazine
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Assessment of a novel patient reported outcome measure for visual snow syndrome: the Colorado visual snow survey 2.0
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Visual Snow Syndrome and Migraine with Aura: Insights from New Research on Distinct Migraine Types
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Dr. Alexander Baldwin Awarded CIHR Grant for Visual Snow Syndrome Research with Support from Visual Snow Initiative
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Exploring the Phenotype and Possible Mechanisms of Palinopsia in Visual Snow Syndrome
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Visual Snow Initiative Roundtable: Global Visual Snow Syndrome Experts Unite to Discuss Ongoing Research Findings, Explore Potential Treatments, and Build Resources for VSS
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