These inspiring individuals with Visual Snow Syndrome have shared their experiences and how they manage its symptoms.
Jérémie Greber
Hello, My name is Jérémie Greber, I am 36 years old and I come from Switzerland. I am affected by…
Gregory Dana Peters
I was born with this neurological issue. I am 62 years old, and throughout my lifetime, I have told doctors…
Louie Laub
When I was little, I had no idea that the way I saw the world wasn’t seen by everyone. It…
Zykia Moore
My name is Zykia Moore, a 36 year old artist from Philadelphia, Pennsylvania. I was diagnosed with Visual Snow Syndrome…
Jack Wilson
Hi, I’m Jack, a 36-year-old living in Witham, Essex, in the United Kingdom. I have never been one for opening…
Lily Badiani-Shah
My name is Lily, and I was diagnosed with Visual Snow Syndrome at 15 years old, although I have been…
Alana Jorge
I was hospitalized in May 2024 after I suddenly began experiencing difficulty breathing and
Bruna Dolan
Hi, VSI team! I’m Bruna, an indie author from Brazil, and finding your profile on TikTok inspired me deeply. Seeing…
Paula Hechinger
In 2016, while I was pregnant, my life changed in a way I never expected. That was the year I…
Jenna Ballance
I first began noticing my symptoms in November of 2023. I’ll never forget the morning I woke up and my…
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The Visual Snow Initiative highlights the experiences of individuals of all ages worldwide who have Visual Snow Syndrome.
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We’d love to hear about your adventure with VSS — your story might help another kid out there!
Latest Research Articles
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New Research Explores Somatosensory Processing in Visual Snow Syndrome
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Visual Snow Syndrome Is Now Featured on the NIH Genetic and Rare Diseases (GARD) Information Center
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New Research Explores the Connection Between Yayoi Kusama and Visual Snow Syndrome
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Visual Snow Initiative and Founder Emeritus Sierra Domb Featured in CNBC Cures
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New Visual Snow Simulator App Developed by Peter Szigeti
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New Study Examines Whether Lumbar Punctures Are Necessary in Visual Snow Syndrome
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