These inspiring individuals with Visual Snow Syndrome have shared their experiences and how they manage its symptoms.
Mandana Omid Bakhtiari
Spotlight on: Mandana 💙 Hello! My name is Mandana Omidbakhtiyari, I’m 36 years old and I live in Glasgow, Scotland.…
Heather Rivera
Hello, my name is Heather, and I’d like to share my story. I recently discovered that I have Visual Snow…
Eedit Hämäläinen
Hello! My name is Eedit, I’m 19 years old and I live in Finland. I have suffered from VSS since…
Mikayla Corrie-Muller
I’m a 21-year-old university student living with Visual Snow Syndrome (VSS) and chronic migraines. My journey to discovering I had VSS started…
Jennifer Bell
I’ve experienced Visual Snow for as long as I can remember. The constant overlay of moving, colorful dots has been…
Ava Baker
Hi! My name is Ava Baker, I am a 19 years old and from Orange County, California. I am currently…
Jasmine Shepard
When I was 11, I saw a video on TikTok mentioning that some people see static in their vision 24/7,…
Anabella Moceri
Hi! My name is Bella, and I live in the United States. I am 21 years old, and my experience…
Kevin and Sophie
My name is Kevin, and I’m a designer, a gamer, and a proud parent of an amazing daughter named Sophie.…
Debora Serafino
Hello! My name is Debora, I’m 22 years old, and I come from Italy. I don’t think I was born…
Share Your Story
The Visual Snow Initiative highlights the experiences of individuals of all ages worldwide who have Visual Snow Syndrome.
Latest Research Articles
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Long COVID and Visual Signs and Symptoms
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The Visual Snow Initiative (VSI) is excited to announce our new video series featuring Dr. Myoung-Hee (Esther) Han!
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Visual Snow Syndrome Research at the University of Melbourne
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New Visual Snow Syndrome Study on Neuromodulation in Spain and Portugal
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New Study: Enhanced Neural Plasticity of the Primary Visual Cortex in Visual Snow Syndrome
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New Study from VSI Collaborators: Visual Snow Is Susceptible to the Motion Aftereffect
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