These inspiring individuals with Visual Snow Syndrome have shared their experiences and how they manage its symptoms.
Tali Chais
I am an illustrator and cartoonist based in Upstate New York and a current graduate student in Hollins University’s Writing…
Brandon Strachan
Growing up, I always thought everyone saw the world the way I did. For as long as I can remember,…
Eryn Levey
When I would lie in bed at night as a child, I used to see linear brick patterns spawn from…
Max Fisher
Hi! My name is Max, and I am a Cell Biologist and a Disability in STEM Advocate. I am committed…
Jérémie Greber
Hello, My name is Jérémie Greber, I am 36 years old and I come from Switzerland. I am affected by…
Gregory Dana Peters
I was born with this neurological issue. I am 62 years old, and throughout my lifetime, I have told doctors…
Louie Laub
When I was little, I had no idea that the way I saw the world wasn’t seen by everyone. It…
Zykia Moore
My name is Zykia Moore, a 36 year old artist from Philadelphia, Pennsylvania. I was diagnosed with Visual Snow Syndrome…
Jack Wilson
Hi, I’m Jack, a 36-year-old living in Witham, Essex, in the United Kingdom. I have never been one for opening…
Lily Badiani-Shah
My name is Lily, and I was diagnosed with Visual Snow Syndrome at 15 years old, although I have been…
Share Your Story
The Visual Snow Initiative highlights the experiences of individuals of all ages worldwide who have Visual Snow Syndrome.
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We’d love to hear about your adventure with VSS — your story might help another kid out there!
Latest Research Articles
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Can Blind, Deaf, DeafBlind, or Hard of Hearing People Have Visual Snow Syndrome (VSS)? Does VSS Affect Them Differently?
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BBC Science Focus Brings Greater Recognition to Visual Snow Syndrome
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Sierra Domb Shares Her Visual Snow Syndrome Journey With CNBC Cures
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New Research in Japan Explores Visual Snow Syndrome and Its Connection With Migraine
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New Research Explores Somatosensory Processing in Visual Snow Syndrome
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Visual Snow Syndrome Is Now Featured on the NIH Genetic and Rare Diseases (GARD) Information Center
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