Visual Snow Conference Videos

About

Sierra Domb experienced the onset of Visual Snow Syndrome (VSS), a debilitating neurological disorder, in 2015. Throughout her journey in seeking a correct diagnosis for her symptoms, Sierra encountered an alarming absence of recognition for her condition, as well as minimal resources available to help VSS patients. Once Sierra Domb realized that she was not alone and others with VSS worldwide had a similar experience of being misdiagnosed and marginalized, she founded the Visual Snow Initiative to help create solutions.

Organized by Sierra Domb and the Visual Snow Initiative team, one of their earliest efforts was the establishment of the first Visual Snow Conference in history. Held on May 5th, 2018, at UCSF, Sierra Domb and her team hosted a free summit that brought together patients, their families, and Visual Snow experts from around the world. Doctors, researchers, and scientists with knowledge of Visual Snow Syndrome flew in from Australia, Canada, England, and various cities in the United States. Alongside Sierra Domb, their words offered acknowledgement and validation to patients and their families. Everyone involved sought to raise awareness, share the current body of research, provide education, offer resources, and foster understanding for Visual Snow Syndrome.