Meet Our

Warrior of the Week

These inspiring individuals with Visual Snow Syndrome are sharing their experiences living with this condition and how they try their best to overcome its symptoms everyday.

Spotlight on:

Visual Snow Warrior of the Week-Paul Schuch

Meet our #WarriorOfTheWeek, Paul Schuch! ????

Spotlight on: Paul Schuch @_paulschuch

Hello,

My name is Paul, and I’m 32 years old, and I live in Vienna, Austria.

When I was around 6 years old, I noticed that something had changed with my visual and that I noticed black and white dots all over the place.

It started after I ran into a shovel that accidentally hit me between the eyes while playing with friends. Since then, I remember stressing out about it and even visiting some doctors, but nobody could tell me what it was. I even visited a special eye clinic in Salzburg when I was 17, but they couldn’t help me.

So I lived with it, sometimes researching on the web but never found a thing. Sometimes it didn’t bother me so much, and sometimes, it got worse.

Most of the time, it was better when I just had the chance to ignore it or find peace with it. But often, I noticed side effects next to the dots, too, and they got worse when sitting in rooms with lots of people in bright light, reading a book, staring at bright screens, etc. Sometimes everything seemed a little blurry or as if I saw double too.

In these moments, I became tired quickly, had big concentration problems, and couldn’t focus well. And after so many years, I finally stumbled on this website, and it finally has a name.

I finally know what it is and that I’m not the only one. That’s my story. I hope I can support getting VSS out in the world and help find a cure or at least find ways to improve the symptoms.

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