Meet Our

Warrior of the Week

These inspiring individuals with Visual Snow Syndrome are sharing their experiences living with this condition and how they try their best to overcome its symptoms everyday.

Spotlight on:

Shay Walsh

Meet our #Warriorsoftheweek, Shay Walsh💙

Spotlight on: Shay Walsh

First of all, I can’t believe that I can actually tell my story. Living with it for over 50 years with no one believing me has been the hardest thing. Being branded as a liar, fantasist and not being believed has taken it’s toll. People tell me that what I see is “just floaters” or my own imagination and “not to be so silly”. Be they opticians, GPs, or my own family.
I did research this about 12 years ago online, but only found one small image of what it is we see. It is good to see so many more articles and a recognition of the syndrome that I can share with others and in a way I feel vindicated.
I have had VSS for as long as I can remember since a child, but like others, I did not realize what I was seeing was not normal. It was not until I undertook my nurse training and we covered the eye/brain that I realized that I may be different.
I have 2 other symptoms. A large and fairly constant amount of ‘floaters’ and the other fairly static objects that are transparent and only visible on a dark background. Luckily I don’t suffer from migraines or any other sensory issues. Although my VSS is constant ‘pulse’ type I believe.
The feeling of being the only one with this condition and not being able to talk about it all these years has had an impact on my life. But finding others with this and not feeling so lonely is a great relief and something I would like to shout out.

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