Visual Snow Initiative
Collaborate, Educate, and Cure
Visual Snow is a neurological condition that impacts an individual’s vision, hearing, and quality of life. It affects a patient’s vision 24/7. That means that there is no relief from it, even when they close their eyes. Our goal is to help those with Visual Snow live and enjoy their lives without fear. Together we will find a cure.
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Help us fund research to find a cure for Visual Snow
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Learn more about how Visual Snow impacts lives
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Help raise awareness and support for Visual Snow
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About Us
The Cure Of Understanding
The Visual Snow Initiative is an extension of The Visual Snow Conference held May 5th 2018 at UCSF. The Visual Snow Conference was established to shine a light on Visual Snow by raising awareness and understanding for those whose lives are directly affected by this condition. The conference film will be available this summer for free on the Visual Snow Conference website.
Updates
Visual Snow News
Dr. Goadsby and Sierra Domb featured on CBS The Doctors
The Visual Snow Initiative is pleased to announce that Dr. Peter Goadsby and the Founder of The Visual Snow Initiative have appeared for a taping on The Doctors, a CBS show with a national and global reach. Date of airing will be announced in the coming weeks. The...
2018 Visual Snow Conference Published in Journal of Neuro-Ophthalmology
The 2018 Visual Snow Conference is recognized and published in the September issue of The Journal of...
Visual Snow Initiative Collaborates With MIT For New Research On Visual Snow
The Visual Snow Initiative team recently met with Ed Boyden, PhD, Neurobiologist at MIT, to discuss ways to utilize their advanced technologies to help unlock the mysteries of Visual Snow. Boyden is the leader of the Synthetic Neurobiology Group, a team at...
Purpose
Why We Do It
The Visual Snow Initiative is an extension of The Visual Snow Conference held May 5th 2018 at UCSF. The Visual Snow Conference was established to shine a light on Visual Snow by raising awareness and understanding for those whose lives are directly affected by this condition.
Visual Snow sounds like it’s harmless, but it is not. It affects people of all ages, but mostly young people in their teens and 20’s. Their eyes are perfect but their world looks far different. Without warning or cause, people with Visual Snow see the world in an overlay of hundreds of tiny moving dots across their field of vision, as well as other disturbing images.
Nobody knows the cause. The images are a 24/7 battle with the eyes open or closed. Research indicates that Visual Snow is a neurological problem, meaning the problem originates in the brain, not the eyes. This would explain why eye tests come back normal for patients with Visual Snow and why it is so difficult for doctors to diagnose.
We need awareness and knowledge to replace unnecessary medical tests. Visual Snow can be traumatic and isolating. We are working on understanding the condition and finding a cure.
What we see in our world we often take for granted…those with Visual Snow cannot.
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“I was determined not to let Visual Snow stifle my ambition. I did not want this circumstance to turn me into a person I wasn’t.”
Sierra Domb, Founder
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Help Raise Awareness
Let’s start working together to build awareness and education for the medical community and those dealing with Visual Snow. Then and only then can we move forward towards a cure.
