Visual Snow Initiative
Collaborate, Educate and Cure
Visual Snow is a neurological condition that impacts an individual’s vision, hearing, and quality of life. It affects a patient’s vision 24/7. That means that there is no relief from it, even when they close their eyes. Our goal is to help those with Visual Snow live and enjoy their lives without fear. Together we will find a cure.
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Fundraising
VSI Raises $140,000 For Visual Snow Research At Monash University
VSI Raises $140,000 For Visual Snow Research At Monash University
VSI Raises $100,000 For Visual Snow Research At Kings College London
VSI Raises $100,000 For Visual Snow Research At Kings College London
VSI Raises $125,000 For Visual Snow Research At University of Colorado
VSI Raises $125,000 For Visual Snow Research At University of Colorado
The Cure Of Understanding
The Visual Snow Initiative is an extension of The Visual Snow Conference held May 5th 2018 at UCSF. The Visual Snow Conference was established to shine a light on Visual Snow by raising awareness and understanding for those whose lives are directly affected by this condition. The conference film will be available this summer for free on the Visual Snow Conference website.
Visual Snow News
Visual Snow Featured On CBS’ The Doctors
Founder Sierra Domb and Dr. Peter Goadsby are featured on CBS' The Doctors television show on May 13, 2019. The Doctors are joined by Sierra, who has visual snow, and her neurologist, Dr. Peter Goadsby. Sierra says she first realized something was wrong when she was...
Visual Snow Initiative Raises $125,000 For Visual Snow Research At University of Colorado
“Our neurovisual research group at the University of Colorado School of Medicine is extremely grateful for the support and we are busy planning the research trial. Without the support of the Visual Snow Initiative, the trial would never be possible. We expect to have...
Visual Snow Initiative Presents Neuroscientist Ed Boyden with Váró Brain Sculpture for His Support to Advance a Cure
Paul Domb, Co-founder, the Visual Snow Initiative, presented an abstract brain sculpture to neuroscientist Dr. Edward Boyden on April 3, 2019 at the McGovern Reading Room at MIT. Created by world-renowned sculptor Márton Váró, The Brain was given to Dr. Boyden as...
Why We Do It
The Visual Snow Initiative is an extension of The Visual Snow Conference held May 5th 2018 at UCSF. The Visual Snow Conference was established to shine a light on Visual Snow by raising awareness and understanding for those whose lives are directly affected by this condition.
Visual Snow sounds like it’s harmless, but it is not. It affects people of all ages, but mostly young people in their teens and 20’s. Their eyes are perfect but their world looks far different. Without warning or cause, people with Visual Snow see the world in an overlay of hundreds of tiny moving dots across their field of vision, as well as other disturbing images.
Nobody knows the cause. The images are a 24/7 battle with the eyes open or closed. Research indicates that Visual Snow is a neurological problem, meaning the problem originates in the brain, not the eyes. This would explain why eye tests come back normal for patients with Visual Snow and why it is so difficult for doctors to diagnose.
We need awareness and knowledge to replace unnecessary medical tests. Visual Snow can be traumatic and isolating. We are working on understanding the condition and finding a cure.
What we see in our world we often take for granted…those with Visual Snow cannot.
