Sierra Domb has now confirmed the submission of a proposal to include Visual Snow Syndrome (VSS) in the ICD, supported by testimonies. If approved by the World Health Organization, this recognition will provide global benefits, including insurance coverage, financial support, increased awareness, and standardized research, data collection, analysis, diagnosis, and more treatment options for patients with VSS.
Current List of Advocates
The proposal, spearheaded by Dr. Peter Goadsby, Dr. Owen White, and the Visual Snow Initiative, is backed by testimonies from the following advocates:
Sierra Domb – Founder & CEO, Visual Snow Initiative
Prof. & Dr. Peter Goadsby – Director, National Institute for Health Research – Wellcome Trust King’s Clinical Research Facility, King’s College London, UCLA
Prof. & Dr. Owen White – Clinical Director Ocular Motor Laboratory, Monash University
Dr. Francesca Puledda – Neurologist, King’s College London
Prof. & Dr. Christoph Schankin – Department of Neurology, Bern University Hospital
Dr. Sui Wong – Consultant Neurologist and Neuro-ophthalmologist, Guy’s and St Thomas’ NHS Foundation Trust, Moorfields Private Eye Hospital
A/Prof & Dr. Clare Fraser – Save Sight Institute, The University of Sydney
A/Prof & Dr. Carrie “Beth” Robertson – Department of Neurology, Mayo Clinic
Prof. & Dr. Kathleen Digre – Neurology and Ophthalmology, University of Utah
Isobel Hay – NHS Dumfries and Galloway, Pediatrics
Dr. Prem Subramanian – MD, PhD, NANOS President
Toma Kinville-Ossian – NANOS Executive Director
Vanessa Mora – Director of Research, Visual Snow Initiative
Check out Sierra Domb’s Website to learn more: “Visual Snow ICD Proposal Submitted, List Of Advocates”.
