ICD Update: Global Recognition for Visual Snow Syndrome

Home >

Sierra Domb has now confirmed the submission of a proposal to include Visual Snow Syndrome (VSS) in the ICD, supported by testimonies. If approved by the World Health Organization, this recognition will provide global benefits, including insurance coverage, financial support, increased awareness, and standardized research, data collection, analysis, diagnosis, and more treatment options for patients with VSS.

Current List of Advocates

The proposal, spearheaded by Dr. Peter Goadsby, Dr. Owen White, and the Visual Snow Initiative, is backed by testimonies from the following advocates:

Sierra Domb – Founder & CEO, Visual Snow Initiative

Prof. & Dr. Peter Goadsby – Director, National Institute for Health Research – Wellcome Trust King’s Clinical Research Facility, King’s College London, UCLA

Prof. & Dr. Owen White – Clinical Director Ocular Motor Laboratory, Monash University

Dr. Francesca Puledda – Neurologist, King’s College London

Prof. & Dr. Christoph Schankin – Department of Neurology, Bern University Hospital

Dr. Sui Wong – Consultant Neurologist and Neuro-ophthalmologist, Guy’s and St Thomas’ NHS Foundation Trust, Moorfields Private Eye Hospital

A/Prof & Dr. Clare Fraser – Save Sight Institute, The University of Sydney

A/Prof & Dr. Carrie “Beth” Robertson – Department of Neurology, Mayo Clinic

Prof. & Dr. Kathleen Digre – Neurology and Ophthalmology, University of Utah

Isobel Hay – NHS Dumfries and Galloway, Pediatrics

Dr. Prem Subramanian – MD, PhD, NANOS President

Toma Kinville-Ossian – NANOS Executive Director

Vanessa Mora – Director of Research, Visual Snow Initiative

Check out Sierra Domb’s Website to learn more: “Visual Snow ICD Proposal Submitted, List Of Advocates”.

Table of Contents

Have questions?
Printable Documents
Download and print out the document needed for your personal or professional requirements.