Visual Snow Initiative Collaborates with MIT for New Research on Visual Snow Syndrome

The Visual Snow Initiative team recently met with Ed Boyden, PhD, Neurobiologist at MIT, to discuss ways to utilize their advanced technologies to help unlock the mysteries of Visual Snow. Boyden is the leader of the Synthetic Neurobiology Group, a team at MIT dedicated to developing tools that enable the mapping of the molecules and wiring of the brain, the recording and control of its neural dynamics, and the repair of its dysfunction.

As a result of that meeting, Dr. Peter Goadsby, Dr. Owen White, and Joanne Fielding will be initiating many of MIT’s recommendations for the application of new technologies in their Visual Snow research efforts. “Meeting a true inventor and creator interested and open-minded to discuss different problems was fantastic. I am sure we will make some important strides in understanding Visual Snow,” says Dr. Peter Goadsby, Professor of Neurology.

Boyden offered his insight and expertise and was kind enough to put our experts in contact with his colleagues around the world to help with Visual Snow research. “I think we achieved the first goal–to get scientists and clinicians interested in exploring our new tools for Visual Snow. Once we see how they work, we can then refine the tools if needed,” says Boyden.

Dr. Owen B. White and Joanne Fielding shared a joint statement about the improved future of research on Visual Snow: “Overall, the meeting was valuable, bringing together new technology and combining it with clinical impressions and known research data to try and accelerate the way forward.”

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New Visual Snow Syndrome Study!

The VSI has been working with Dr. Tsang in California and Dr. Shidlofsky in Texas. Both doctors have been highly successful in reducing, and in some cases, eliminating symptoms of Visual Snow Syndrome in their patients. When we learned that their philosophies and methods were strikingly similar and effective, the VSI put them in contact with each other. They are now collaborating on an enhanced VSS protocol. They will be accepting new patients for this study.

Today, the VSI will be releasing a series of informational videos on our YouTube channel in which Dr. Tsang and Dr. Shidlofsky discuss their experience in treating VSS. The VSI will also post video testimonials from their patients. We are enthusiastic and optimistic to share Dr. Tsang’s and Dr. Shidlofsky’s insights with the VSS community. If you would like to make an appointment with either Dr. Tsang or Dr. Shidlofsky, their contact information will appear at the end of each video. Watch the videos here: http://bit.ly/VSIYouTube.

We recognize that the majority of people with VSS cannot travel to California or Texas to take part in this study. Therefore, once the study has concluded, Dr. Tsang and Dr. Shidlofsky have agreed to make a series of instructional videos that will show their step-by-step protocol, which can be done at home. They will offer suggestions and techniques that will allow the use of household items versus in-office medical equipment. The VSI will also make these videos available.

We would like to thank Dr. Tsang, Dr. Shidlofsky, Kelsey NaPier, and Michael Neustifter for their kind and generous contribution to the VSS community.

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