Many who have #VisualSnowSyndrome also have #Tinnitus. We collaborated with the good people at Tinnitus Hub on this podcast where #VSI Founder Sierra Domb and neurologist Dr. Peter Goadsby talk about their experiences in trying to push the envelope for #VisualSnow sufferers as well as the analogies between the two conditions.
Visual snow is a poorly understood condition. The patient experience is often one of being misunderstood, and research is in its infancy. What can be done? Two pioneers in this field, patient advocate Sierra Domb and neurologist Dr. Peter Goadsby, talk about their incredible experiences in trying to push the envelope for visual snow sufferers.
Much of this sounds eerily similar to the tinnitus experience, and we spoke extensively about the analogies between the two conditions. Both are invisible illnesses, both are related to sensory perception, both exist on a scale of severity, both are little recognized and severely underfunded.