As some of you may know, VSI has been working with two wonderful and passionate doctors: Dr. Terry Tsang and Dr. Charles Shidlofsky (“Dr. S”). The VSI brought Dr. Tsang and Dr. S together because of their success in reducing or eliminating symptoms of VSS in their patients. They are now collaborating on a new enhanced protocol to treat VSS.

What’s Next?

As a result of their video series, https://www.youtube.com/c/VisualSnowInitiative, Dr. Tsang and Dr. S have enough VSS patients to begin their first-ever VSS Study in October 2020.

Why is This Important?

VSS negatively impacts everyone’s quality of life. However, due to the wide variety of visual and non-visual symptoms, some people are able to cope with their symptoms while others cannot. The objective of the Tsang/Shidlofsky Study is to further develop their already-successful therapies in treating VSS.

What Has Changed?

Originally, the VSI felt the best course of action to help those trying to deal with VSS was to produce a new series of videos where Dr. Tsang and Dr. S would demonstrate their treatments. However, due to both legal and practical ramifications, the VSI is planning to hold a VSS Medical Conference in the near future where Dr. Tsang and Dr. S will share their findings and methods with the medical community, those whose lives have been impacted by VSS, and the press. We believe that the Conference will provide a significant outreach to optimize how VSS is treated in the future. For those who cannot attend, the VSS Medical Conference will be recorded and live-streamed.

Will Treatments be Customized to My Needs?

The VSI, Dr. Tsang, and Dr. S want to help as many people as possible and produce the greatest potential for reducing symptoms. The impact of VSS varies from person-to-person. Some have low level dysfunction while others have a higher level. In order to achieve the best results, the doctors must evaluate which symptoms the individual patient is dealing with and how those symptoms impact their lives before therapy can begin. A person who is in a high-level state of dysfunction cannot begin therapy at the same place as a person experiencing a different level.

The VSI is grateful to Dr. Tsang and Dr. S because it may be the first time a person diagnosed with VSS hears these words from their doctor: “Here is what you do.” We believe their study will be significant in the lives of many… stay tuned!

— Your friends at the VSI

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“Ten years ago, in 2012, we presented work at a neurology meeting systematically describing why Visual Snow was not simply migraine aura and was a distinct disease entity. This was not received with universal acclaim, to say the least. In the intervening period, visual snow has come in from the medical ‘cold’ and is being studied actively by a number of groups on three continents. The recognition of the condition, broadening education, and funding research would not have happened were it not for the Visual Snow Initiative. I realize to the many with this often very disabling condition that it seems nothing has or is being done. Progress to treatment is never fast enough nor advances to recognition and understanding. With that said, visual snow research would be idling in a backwater where it not the Initiative. Going forward, we need to double, re-double, and re-double again our efforts for the search for effective treatments and, one day, a cure. Thank you for the Visual Snow Initiative for all you have done and continue to do.”

— Peter Goadsby, MD, PhD, DSc, Professor of Neurology, UCLA, Awarded 2021 Brain Prize

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