The Visual Snow Initiative (VSI) and The Misdiagnosis Association and Research Institution (MARI) are now working together to spread even more awareness for Visual Snow Syndrome within the international medical community and offering new resources to patients & doctors! MARI is a nonprofit and multidisciplinary academic organization focused on research in the areas of misdiagnosis, malpractice, and error in treatment. Dr. Pooya KM Beigi and the experienced team at MARI are dedicated to finding the root causes of error in medicine and addressing them through awareness, education, and proactive research.

Through our collaboration and shared resources, VSI & MARI will be able to further reduce the prevalence of misdiagnosis and/or the absence of a diagnosis for the Visual Snow and medical communities.

MARI collaborates with over 600 professors, educational professionals, and researchers worldwide. They have also published more than 198 scientific papers/articles and various textbooks. MARI will be able to outsource its research capabilities for widespread distribution of VSI’s information, VSS Diagnostic Criteria, and scientific studies related to Visual Snow Syndrome. This will help spread the word by providing VSS awareness to the general public, patients, and healthcare professionals around the world.

MARI Ref is an online medical dictionary for professionals, academics, and the general public to find quick references to the most commonly-misdiagnosed conditions. With the inclusion Visual Snow Syndrome in their database, the possibility of a fast and efficient diagnosis substantially increases.

MARI Consultation connects world-class medical malpractice lawyers, expert physicians, and clinicians to develop a system for patients seeking assistance.

Through MARI YOUTH, children and young adults affected can talk about their experience with Visual Snow Syndrome and participate in events related to STEM. This also includes podcasts, research, science fairs, research projects, interviews, and fun activities.

The VSI would like to thank Dr. Pooya KM Beigi and the MARI team for everything they are doing to help people with Visual Snow Syndrome!

Click here to visit MARI’s website & get involved!

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“Ten years ago, in 2012, we presented work at a neurology meeting systematically describing why Visual Snow was not simply migraine aura and was a distinct disease entity. This was not received with universal acclaim, to say the least. In the intervening period, visual snow has come in from the medical ‘cold’ and is being studied actively by a number of groups on three continents. The recognition of the condition, broadening education, and funding research would not have happened were it not for the Visual Snow Initiative. I realize to the many with this often very disabling condition that it seems nothing has or is being done. Progress to treatment is never fast enough nor advances to recognition and understanding. With that said, visual snow research would be idling in a backwater where it not the Initiative. Going forward, we need to double, re-double, and re-double again our efforts for the search for effective treatments and, one day, a cure. Thank you for the Visual Snow Initiative for all you have done and continue to do.”

— Peter Goadsby, MD, PhD, DSc, Professor of Neurology, UCLA, Awarded 2021 Brain Prize

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