These inspiring individuals with Visual Snow Syndrome have shared their experiences and how they manage its symptoms.
Nathan Do
Hello, my name is Nathan, and I’m 21 years old from Sydney, Australia. My journey with Visual Snow Syndrome (VSS)…
HeloÃsa Vieira Casatti
My name is Heloisa Vieira Casatti, and I am from the city of Araçatuba (São Paulo State), Brazil.I am 29…
Juan forteza
My name is Juan, and I’m from Spain—Mallorca, to be exact. I want to thank Sierra for her work and…
Celestial Jones
I have eyes like my mom. She used to like telling the story about how she came home from work…
Daniel O’Toole
Daniel O’Toole is an artist whose practice blends painting and sound, with a focus on perception and natural phenomena. Over…
Anna Milecki
Hello! I live in Chicago and am 27 years old. I realized I had visual snow after many days of…
Nwando Ebizie
Nwando Ebizie is a multidisciplinary artist who has spent years creating music, performances, and immersive art that reflect her unique…
Mandana Omid Bakhtiari
Spotlight on: Mandana 💙 Hello! My name is Mandana Omidbakhtiyari, I’m 36 years old and I live in Glasgow, Scotland.…
Heather Rivera
Hello, my name is Heather, and I’d like to share my story. I recently discovered that I have Visual Snow…
Eedit Hämäläinen
Hello! My name is Eedit, I’m 19 years old and I live in Finland. I have suffered from VSS since…
Share Your Story
The Visual Snow Initiative highlights the experiences of individuals of all ages worldwide who have Visual Snow Syndrome.
You Are All Our Superheroes!
We’d love to hear about your adventure with VSS — your story might help another kid out there!
Latest Research Articles
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New Research Explores Somatosensory Processing in Visual Snow Syndrome
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Visual Snow Syndrome Is Now Featured on the NIH Genetic and Rare Diseases (GARD) Information Center
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New Research Explores the Connection Between Yayoi Kusama and Visual Snow Syndrome
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Visual Snow Initiative and Founder Emeritus Sierra Domb Featured in CNBC Cures
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New Visual Snow Simulator App Developed by Peter Szigeti
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New Study Examines Whether Lumbar Punctures Are Necessary in Visual Snow Syndrome
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