These inspiring individuals with Visual Snow Syndrome have shared their experiences and how they manage its symptoms.
Mandana Omid Bakhtiari
Spotlight on: Mandana 💙 Hello! My name is Mandana Omidbakhtiyari, I’m 36 years old and I live in Glasgow, Scotland.…
Heather Rivera
Hello, my name is Heather, and I’d like to share my story. I recently discovered that I have Visual Snow…
Eedit Hämäläinen
Hello! My name is Eedit, I’m 19 years old and I live in Finland. I have suffered from VSS since…
Mikayla Corrie-Muller
I’m a 21-year-old university student living with Visual Snow Syndrome (VSS) and chronic migraines. My journey to discovering I had VSS started…
Jennifer Bell
I’ve experienced Visual Snow for as long as I can remember. The constant overlay of moving, colorful dots has been…
Ava Baker
Hi! My name is Ava Baker, I am a 19 years old and from Orange County, California. I am currently…
Jasmine Shepard
When I was 11, I saw a video on TikTok mentioning that some people see static in their vision 24/7,…
Anabella Moceri
Hi! My name is Bella, and I live in the United States. I am 21 years old, and my experience…
Kevin and Sophie
My name is Kevin, and I’m a designer, a gamer, and a proud parent of an amazing daughter named Sophie.…
Debora Serafino
Hello! My name is Debora, I’m 22 years old, and I come from Italy. I don’t think I was born…
Share Your Story
The Visual Snow Initiative highlights the experiences of individuals of all ages worldwide who have Visual Snow Syndrome.
You Are All Our Superheroes!
We’d love to hear about your adventure with VSS — your story might help another kid out there!
Latest Research Articles
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Bestselling Author Samantha Shannon Shares Her Experience with Visual Snow Syndrome
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Dating and Relationships with Visual Snow Syndrome: VSS-Friendly Date Ideas and Experiences
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Visual Snow Initiative Educates Future Ophthalmologists on Visual Snow Syndrome at University of Montreal
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Visual Snow Initiative Founder, Sierra Domb, Featured in Global Genes
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Altered functional connectivity strength between structurally and functionally affected brain regions in visual snow syndromeÂ
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AnCan Special Guest: Dr. Paula Hechinger
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