Meet Our

Warrior of the Week

These inspiring individuals with Visual Snow Syndrome are sharing their experiences living with this condition and how they try their best to overcome its symptoms everyday.

Spotlight on:

Jamilly Kely Serra Sousa

Meet our #Warrioroftheweek, Jamilly Kely Serra Sousa💙

Spotlight on: Jamilly

Hi, my name is Jamilly. I’m from Brazil, from the city of São Luís do Maranhão, and I’m only 19 years old. I don’t speak English, so I apologize for any mistakes.

Today, after a long time, I finally found the courage to share everything that happened to me in the last year. I’ve always seen the world the way I do, and I believe I’ve seen it this way since I was a little girl. However, I used to think that everyone perceived the world just as I did. I never considered that there might be something wrong with the way I saw and felt things. I always noticed peculiarities in my vision, particularly because it often felt like I was viewing life through an old TV screen. I also experienced minor abnormalities like black or colored bands in my vision.

As I grew up, I started having severe migraine attacks, but I attributed them to my menstrual cycle. Until one day, I had one so intense that it worsened my visual snow, and it pushed me into a state of despair. I began having panic attacks and prolonged episodes of anxiety. I went for days without sleep, spending money on countless medical appointments, medications, and tests. Yet, everything came back as “normal,” with no apparent issues. I kept hearing phrases like, “Your eyesight is perfect,” or “It’s just anxiety.” It was somewhat comforting to learn that visual snow isn’t blinding or life-threatening.

Today, I’m doing much better. I’ve returned to work, have a supportive boyfriend, and I’m attending the college of my dreams. Confronting visual snow required a leap of faith and represented the most courageous step in my life.

Ongoing psychological support is crucial, so please don’t neglect your mental health. A balanced diet, therapy, hydration, physical exercise, pursuing your passions, and having a strong support network can make this journey more manageable.

Let’s not let go of each other’s hands as we continue on this path toward treatment, and who knows, maybe even a cure. Visual snow didn’t stop me; it didn’t defeat me. Don’t let it define you either. We’re in this together!

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