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Warrior of the Week

These inspiring individuals with Visual Snow Syndrome are sharing their experiences living with this condition and how they try their best to overcome its symptoms everyday.

Spotlight on:

Visual Snow Warrior of the Week – Christina Mannetti

Meet Christina, our #WarriorOfTheWeek! ✨

Spotlight on: Christina Mannetti ???? @christinanorakelly

“Hi! I’m Christina and live in the US. I’ve been dealing with VS since August 2020. It took about 7 months of tests, doctors, and a lot of anxiety to receive my VS diagnosis. I was originally told I had BPPV, but none of my symptoms fit. I, myself discovered I could have VS about 3 months in. Some doctors I saw had no idea VS existed and kept telling me it’s all anxiety or in my head, but finally a neurologist referred me to a neuro ophthalmologist and she knew exactly what was happening- or as much as you can know about VS. I have excessive floaters, static which is most noticeable in bright or neutral settings, tinnitus, palinopsia, headaches, head pressure, dizziness, enhanced entoptic phenomena, and photophobia. I have really good days and some really bad ones. I’m learning to manage my symptoms, listen to my body, and control my anxiety. I have noticed some improvement since August, but visually nothing has changed for me. The biggest thing for me was getting a handle on my anxiety and depression. Before this happened I had manageable anxiety and never dealt with depression. I talked to someone close to me, decided it was time to try medication, and started eating healthy and exercising daily. Yoga has been a great help with managing my anxiety as well. Since I’m pretty new to this community I’m not sure how much help or advice I can offer, but I do know finding someone to talk to and being your own advocate when you know something is not right is so important. I am so grateful that I had support and enough determination to figure out what was happening to me. I know I have a long road to discover this new me, but I’m hopeful that I can still do things I love. I am also happy that I found this community to not feel so alone and also help raise awareness of VS.”

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