Meet Estrella, our next #WarriorOfTheWeek! Hear about how she found out she had #VisualSnow and her fight to stay strong and keep going. πŸ‘πŸ§ πŸ’ͺ

Spotlight on: Estrella Clavijo 🌟 @allismindphotography

β€œHello, my name is Estrella, I’m 40 years old and at 32, I started having Visual Snow. Today I can put a name to it, but back then I didn’t know what was happening to me. I was terrified of driving, although I had no choice but to go to work. I lost my vision, and came to endure silver effects that occupied my entire field. I had a really bad time. I was very depressed that the eye doctors did not tell me anything. Everything was fine according to them, that made me sadder. Because I just needed a name for a diagnosis, I was not crazy. Over the years, I only consulted through books and internet with what I suffered. Also note that “not always” but in most crises they were associated with hormonal changes.

From the calmness, I could appreciate the whole process. In my case a flare lasts 30 to 45 minutes. It starts at a very small point, it gets bigger, it starts to lengthen in the form of C and gets bigger. When the C is very large it occupies almost the entire viewing angle of one of my eyes.

Today I live with relief because in a library, I found a name: Visual Snow Syndrome, next to a drawing that perfectly represented what I saw. And over the years thanks to that name, I found your page and the number of people who suffer from it. It is a great joy to know that there is a great team investigating it, something that for many of us, has been a horror, not knowing what was happening to us or failed diagnoses. They told me that I had Behcet’s syndrome and that the vision problems would go away. So today I live with relief, with my vision of snow. And when I drive and it appears, I focus my attention on the vision of my other eye and let it be. “No pasa nada” … you can live happily with Visual Snow.” πŸ’—

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Introducing The Visual Imagery Project

The Visual Snow Initiative is excited to announce the release of the Visual Imagery Project (VIP), a 21-day online protocol designed to reduce visual snow symptoms via custom created visual imagery. Those who would like to participate can register now and begin your 21 day protocol. To begin, click here: visualsnowproject.com.

  • In order to get the full benefit of the Visual Imagery Project, we encourage you to watch both video tutorials.
  • Only desktops and laptops can be used for the VIP.
  • Only Google Chrome and Firefox browsers will work with the VIP.
  • These browsers are available for download free of charge on the VIP’s homepage.
  • The VIP’s protocol is 21 days and each session is approximately 30 minutes per day.
  • Each day, before beginning the viewing session, you will need to complete a Progress Evaluation. The information you provide will be saved daily in order to track your progress.
  • Due to the size of the visual imagery files used in the VIP, a strong WiFi connection is required. If you experience any technical difficulties with the Visual Imagery Project (VIP), please email us at info@visualsnowinitiative.org

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