Meet Estrella, our next #WarriorOfTheWeek! Hear about how she found out she had #VisualSnow and her fight to stay strong and keep going. ???

Spotlight on: Estrella Clavijo ? @allismindphotography

“Hello, my name is Estrella, I’m 40 years old and at 32, I started having Visual Snow. Today I can put a name to it, but back then I didn’t know what was happening to me. I was terrified of driving, although I had no choice but to go to work. I lost my vision, and came to endure silver effects that occupied my entire field. I had a really bad time. I was very depressed that the eye doctors did not tell me anything. Everything was fine according to them, that made me sadder. Because I just needed a name for a diagnosis, I was not crazy. Over the years, I only consulted through books and internet with what I suffered. Also note that “not always” but in most crises they were associated with hormonal changes.

From the calmness, I could appreciate the whole process. In my case a flare lasts 30 to 45 minutes. It starts at a very small point, it gets bigger, it starts to lengthen in the form of C and gets bigger. When the C is very large it occupies almost the entire viewing angle of one of my eyes.

Today I live with relief because in a library, I found a name: Visual Snow Syndrome, next to a drawing that perfectly represented what I saw. And over the years thanks to that name, I found your page and the number of people who suffer from it. It is a great joy to know that there is a great team investigating it, something that for many of us, has been a horror, not knowing what was happening to us or failed diagnoses. They told me that I had Behcet’s syndrome and that the vision problems would go away. So today I live with relief, with my vision of snow. And when I drive and it appears, I focus my attention on the vision of my other eye and let it be. “No pasa nada” … you can live happily with Visual Snow.” ?

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In addition to VSI research currently underway in London, Colorado, Texas and California, the VSI is also raising money for VSS via a worldwide auction. You can find out more about the auction here, VSS research results will be posted on our website as they become available. Thank you.

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