Spotlight on: Shelbie Moon 💛 @shelbiemoon

“Hi! My name is Shelbie. I am 20 years old. I’ve had VSS for as long as I can remember. I grew up having migraines, and over the years I’ve begun to experience vertigo, tinnitus, floaters, static, and waves in my vision. It’s difficult trying to explain to some that this is not only a migraine, but an ongoing problem.

Doctors repeatedly treated me for anxiety and depression because I was healthy. I’ve had blood work and MRI many times. Everything would come back normal. I accepted that I was experiencing something no one else had to and tried to ignore it. Eye doctors told me my eyes looked normal and my pain was yet again dismissed. I felt misunderstood and isolated. In April of this year I found an eye doctor that finally listened to me and took detailed notes. I stressed that these symptoms were not followed by migraines, but were continuous with no breaks. She allowed me to do a visual field test showing just how much of my vision was being covered. She took a step further to research my symptoms and even go through old text books. I was diagnosed with VSS and palinopsia as well.

I’m thankful to know I’m not alone! I refuse to allow VSS to control my life and keep me from doing the things I love. I want to meet and help others experiencing VSS. I hope and pray that someday a cure will be found!”

Stay Informed!

Join our mailing list to receive the latest news and updates from the Visual Snow Initiative team! We'll include information about Visual Snow research, strategies to spread awareness, and upcoming events.

You have Successfully Subscribed!

“Ten years ago, in 2012, we presented work at a neurology meeting systematically describing why Visual Snow was not simply migraine aura and was a distinct disease entity. This was not received with universal acclaim, to say the least. In the intervening period, visual snow has come in from the medical ‘cold’ and is being studied actively by a number of groups on three continents. The recognition of the condition, broadening education, and funding research would not have happened were it not for the Visual Snow Initiative. I realize to the many with this often very disabling condition that it seems nothing has or is being done. Progress to treatment is never fast enough nor advances to recognition and understanding. With that said, visual snow research would be idling in a backwater where it not the Initiative. Going forward, we need to double, re-double, and re-double again our efforts for the search for effective treatments and, one day, a cure. Thank you for the Visual Snow Initiative for all you have done and continue to do.”

— Peter Goadsby, MD, PhD, DSc, Professor of Neurology, UCLA, Awarded 2021 Brain Prize

Donate Today

You have Successfully Subscribed!