Spotlight on: Shelbie Moon 💛 @shelbiemoon

“Hi! My name is Shelbie. I am 20 years old. I’ve had VSS for as long as I can remember. I grew up having migraines, and over the years I’ve begun to experience vertigo, tinnitus, floaters, static, and waves in my vision. It’s difficult trying to explain to some that this is not only a migraine, but an ongoing problem.

Doctors repeatedly treated me for anxiety and depression because I was healthy. I’ve had blood work and MRI many times. Everything would come back normal. I accepted that I was experiencing something no one else had to and tried to ignore it. Eye doctors told me my eyes looked normal and my pain was yet again dismissed. I felt misunderstood and isolated. In April of this year I found an eye doctor that finally listened to me and took detailed notes. I stressed that these symptoms were not followed by migraines, but were continuous with no breaks. She allowed me to do a visual field test showing just how much of my vision was being covered. She took a step further to research my symptoms and even go through old text books. I was diagnosed with VSS and palinopsia as well.

I’m thankful to know I’m not alone! I refuse to allow VSS to control my life and keep me from doing the things I love. I want to meet and help others experiencing VSS. I hope and pray that someday a cure will be found!”

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