Introducing our #WarriorOfTheWeek, Maeve! Hear her #VSS story and what helps her manage symptoms. 👓

Spotlight on: Maeve Wysocki 💫

“Hi! My name is Maeve Wysocki. I’m 20 years old and I’m from Cleveland area, Ohio. I’ve had VS ever since I can remember, but I always thought it was either normal, a natural stress reaction, or I tried to ignore it (depending on the symptom). I only learned that I had it a few months ago when the symptoms were getting so bad that it was interfering with my daily functioning and I needed to figure out what was going on. It was a comfort to know I wasn’t going crazy haha! The worst one for me is pretty severe light sensitivity… that’s why I wear these rose tinted glasses from Axon Optics and they help a lot! I also deal with ghosting, various entoptic phenomena, static, loss of contrast sensitivity, minor & intermittent tremors in my hands and feet, eye pressure, and others… the works! Sometimes I get discouraged because I know there’s nothing I can do to “fix” it and I wish seemingly small things like reading, driving at night, turning a light on, etc. weren’t so hard or painful sometimes. But I have come to be content with whether my VS stays the same over time, gets worse, or gets better. I’d much rather be grateful for the life I’ve been blessed with than wallow in what I wish was different! And I’ve come to enjoy working on doing little things to help manage symptoms- like working out regularly, limiting screen time, taking CBD isolate daily, and of course wearing these specs. No matter your experience with VS, you’re not in it alone! We’re in this together, let’s find a cure! 😊”

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New Visual Snow Syndrome Study!

The VSI has been working with Dr. Tsang in California and Dr. Shidlofsky in Texas. Both doctors have been highly successful in reducing, and in some cases, eliminating symptoms of Visual Snow Syndrome in their patients. When we learned that their philosophies and methods were strikingly similar and effective, the VSI put them in contact with each other. They are now collaborating on an enhanced VSS protocol. They will be accepting new patients for this study.

Today, the VSI will be releasing a series of informational videos on our YouTube channel in which Dr. Tsang and Dr. Shidlofsky discuss their experience in treating VSS. The VSI will also post video testimonials from their patients. We are enthusiastic and optimistic to share Dr. Tsang’s and Dr. Shidlofsky’s insights with the VSS community. If you would like to make an appointment with either Dr. Tsang or Dr. Shidlofsky, their contact information will appear at the end of each video. Watch the videos here: http://bit.ly/VSIYouTube.

We recognize that the majority of people with VSS cannot travel to California or Texas to take part in this study. Therefore, once the study has concluded, Dr. Tsang and Dr. Shidlofsky have agreed to make a series of instructional videos that will show their step-by-step protocol, which can be done at home. They will offer suggestions and techniques that will allow the use of household items versus in-office medical equipment. The VSI will also make these videos available.

We would like to thank Dr. Tsang, Dr. Shidlofsky, Kelsey NaPier, and Michael Neustifter for their kind and generous contribution to the VSS community.

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