(The Visual Snow Initiative does not publish any data unless it has been thoroughly vetted and approved by the researchers responsible for scientific studies.)
Our News & Research section features important updates on the Visual Snow Initiative, including research studies, interviews, projects, and other relevant information about our global efforts and progress regarding Visual Snow Syndrome.
Visual Snow Initiative Founder, Sierra Domb, Featured in The Mighty
The Mighty, a leading digital health community dedicated to amplifying the voices of people living…
TMS-evoked phosphenes and oculomotor responses in Visual Snow Syndrome
Visual Snow Syndrome (VSS) is a condition where people constantly see tiny flickering dots, like…
Turning invisible illness into visible change: Sierra Domb’s story of advocacy living with Visual Snow Syndrome
We are proud to share that Sierra Domb, Founder of the Visual Snow Initiative (VSI),…
Visual Snow Syndrome: Surgery Preparation, Considerations, and Supporting Recovery
For individuals living with Visual Snow Syndrome (VSS), the thought of surgery can bring anxiety…
Bestselling Author Samantha Shannon Shares Her Experience with Visual Snow Syndrome
Samantha Shannon is a bestselling author from London who writes epic fantasy and dystopian novels.…
Dating and Relationships with Visual Snow Syndrome: VSS-Friendly Date Ideas and Experiences
Living with Visual Snow Syndrome (VSS) can affect more than just vision, it can influence…
Visual Snow Initiative Educates Future Ophthalmologists on Visual Snow Syndrome at University of Montreal
Members of the Visual Snow Initiative (VSI) team, including Founder Sierra Domb and Director of…
Visual Snow Initiative Founder, Sierra Domb, Featured in Global Genes
Global Genes, a leading global nonprofit dedicated to supporting and connecting the rare disease community,…
Altered functional connectivity strength between structurally and functionally affected brain regions in visual snow syndrome
Previous studies of Visual snow syndrome (VSS) have shown abnormalities in brain regions involved in…
AnCan Special Guest: Dr. Paula Hechinger
In collaboration with AnCan, Dr. Paula Hechinger will be joining as a special guest at…
Latest Research Articles
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Sierra Domb on the Challenges of Advocacy, Managing Chronic Illness, and Life Lessons
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Sierra Domb on Advocacy, Raising Awareness, and Founding the Visual Snow Initiative
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Resolution of Visual Snow Syndrome Symptoms Through NeuroOptometric Rehabilitation, Chromatic Filters, and Syntonic Phototherapy: A Case Report
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The Visual Snow Initiative (VSI) is excited to announce a new video series featuring Dr. Carrie (Beth) Robertson!
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Sierra Domb on Her Personal Journey with Multiple Chronic Conditions: Visual Snow Syndrome, Erythromelalgia & Autoimmune Dysregulation
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Serotonin reuptake inhibiting antidepressants: A trigger for visual snow syndrome?
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Printable Documents
Research with VSI














































































































Medical & Scientific
Publications
Our global impact and VSI-funded research studies have been featured in the following medical and scientific journals, as well as clinical databases:
Support VSS Research Today
Every donation to the Visual Snow Initiative funds critical Visual Snow Syndrome (VSS) research. Your tax-deductible contribution drives global research efforts and creates a meaningful impact on the lives of those affected by VSS.