VSI and Founder Sierra Featured in Rare Revolution Magazine

VSI and Founder Sierra Featured in Rare Revolution Magazine

VSI and its Founder, Sierra, have been featured in Rare Revolution Magazine! Click the link below to check it out: Full link URL: https://www.rarerevolutionmagazine.com/blog/visual-snow-initiative-the-charity-on-a-mission-to-cure-visual-snow-syndrome The founder of...
VSI and Founder Sierra Domb Featured On Miami’s News@TheU

VSI and Founder Sierra Domb Featured On Miami’s News@TheU

This article was originally published on University of Miami’s News&TheU in September of 2020. University student creates nonprofit to support research on Visual Snow Syndrome Sierra Domb uses her communications skills to raise awareness of and funding for...

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“Ten years ago, in 2012, we presented work at a neurology meeting systematically describing why Visual Snow was not simply migraine aura and was a distinct disease entity. This was not received with universal acclaim, to say the least. In the intervening period, visual snow has come in from the medical ‘cold’ and is being studied actively by a number of groups on three continents. The recognition of the condition, broadening education, and funding research would not have happened were it not for the Visual Snow Initiative. I realize to the many with this often very disabling condition that it seems nothing has or is being done. Progress to treatment is never fast enough nor advances to recognition and understanding. With that said, visual snow research would be idling in a backwater where it not the Initiative. Going forward, we need to double, re-double, and re-double again our efforts for the search for effective treatments and, one day, a cure. Thank you for the Visual Snow Initiative for all you have done and continue to do.”

— Peter Goadsby, MD, PhD, DSc, Professor of Neurology, UCLA, Awarded 2021 Brain Prize

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