These inspiring individuals with Visual Snow Syndrome have shared their experiences and how they manage its symptoms.
Visual Snow Warrior of the Week – Sydney Swogger
Introducing our awesome #WarriorOfTheWeek, Sydney! Hear how photography helps her deal with her #VS, along with her advice to the…
Visual Snow Warrior of the Week – Pedro Marques
Next up, our #WarriorOfTheWeek, Pedro! Hear this strong warrior’s #VSS story. ?
Visual Snow Warrior of the Week – Cynthia Cooper
Introducing our #WarriorOfTheWeek, Cynthia! Hear this talented artist’s story about how she uses art to showcase her #VS. ✨?
Visual Snow Warrior of the Week – Anna Lubas
Meet Anna, our #WarriorOfTheWeek, and hear her inspiring #VSS story. ❤️?
Visual Snow Warrior of the Week – Matija Radanovic
Introducing our awesome #WarriorOfTheWeek! Hear Matija’s #VSS story and what he does to alleviate symptoms. ?❇️
Visual Snow Warrior of the Week – Jasmine Fernandes
Introducing our inspiring #WarriorOfTheWeek, Jasmine! Read about how she first started experiencing #VSS symptoms and how determined she is to keep going. ??✍️
Visual Snow Warrior of the Week – Khaled Al Refai
Meet Khaled, our #WarriorOfTheWeek, & hear his #VSS story. ???
Visual Snow Warrior of the Week – Julia Poetain
Hear from our strong #WarriorOfTheWeek, Julia, & her inspiring #VSS story. ?
Visual Snow Warrior of the Week – Chris Taylor
Meet our #WarriorOfTheWeek, Chris! Read about this awesome photographer’s #VSS story. ??
Visual Snow Warrior of the Week – Emre Guenan
Introducing our #WarriorOfTheWeek, Emre! Hear about how he developed #VSS at a young age and how he reminds himself to…
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The Visual Snow Initiative highlights the experiences of individuals of all ages worldwide who have Visual Snow Syndrome.
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We’d love to hear about your adventure with VSS — your story might help another kid out there!
Latest Research Articles
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Visual Snow Initiative Founder, Sierra Domb, Interviewed by Bold Journey Magazine
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Assessment of a novel patient reported outcome measure for visual snow syndrome: the Colorado visual snow survey 2.0
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Visual Snow Syndrome and Migraine with Aura: Insights from New Research on Distinct Migraine Types
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Dr. Alexander Baldwin Awarded CIHR Grant for Visual Snow Syndrome Research with Support from Visual Snow Initiative
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Exploring the Phenotype and Possible Mechanisms of Palinopsia in Visual Snow Syndrome
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Visual Snow Initiative Roundtable: Global Visual Snow Syndrome Experts Unite to Discuss Ongoing Research Findings, Explore Potential Treatments, and Build Resources for VSS
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