These inspiring individuals with Visual Snow Syndrome have shared their experiences and how they manage its symptoms.
Visual Snow Warrior of the Week – Brenna Nelson
Spotlight on: Brenna Nelson ✨ @brennanelson03
Visual Snow Warrior of the Week – Daniel Newitt
Spotlight on: Daniel Newitt @dcn1777 ?“I have found that music helps me and keeps me busy around the house such…
Visual Snow Warrior of the Week – Jennifer Traver
Introducing Jennifer, our #WarriorOfTheWeek! ❤️ Spotlight on: Jennifer Traver ?
Visual Snow Warrior of the Week – Connor Mainland
Meet our #WarriorOfTheWeek, Connor! ?
Visual Snow Warrior of the Week – Christopher Murray
My name is Christopher Murray! I was diagnosed with Visual Snow Syndrome in December of 2018. My symptoms started off…
Visual Snow Warrior of the Week – April G.
Meet our #WarriorOfTheWeek, April! Hear her #VSS story. ?
Visual Snow Warrior of the Week – Maeve Wysocki
Introducing our #WarriorOfTheWeek, Maeve! Hear her #VSS story and what helps her manage symptoms. ?
Visual Snow Warrior of the Week – Kambiz Roghanchi
Introducing our #WarriorOfTheWeek, Kambiz! Hear his #VSS story. ??
Visual Snow Warrior of the Week – Adam Wilson
Meet our awesome #WarriorOfTheWeek, Adam, and hear his inspiring #VSS story. ??
Visual Snow Warrior of the Week – Stella Mares
Introducing Stella, our #WarriorOfTheWeek! Hear how getting a diagnosis has helped her realize she isn’t alone. ?
Share Your Story
The Visual Snow Initiative highlights the experiences of individuals of all ages worldwide who have Visual Snow Syndrome.
You Are All Our Superheroes!
We’d love to hear about your adventure with VSS — your story might help another kid out there!
Latest Research Articles
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Can Blind, Deaf, DeafBlind, or Hard of Hearing People Have Visual Snow Syndrome (VSS)? Does VSS Affect Them Differently?
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BBC Science Focus Brings Greater Recognition to Visual Snow Syndrome
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Sierra Domb Shares Her Visual Snow Syndrome Journey With CNBC Cures
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New Research in Japan Explores Visual Snow Syndrome and Its Connection With Migraine
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New Research Explores Somatosensory Processing in Visual Snow Syndrome
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Visual Snow Syndrome Is Now Featured on the NIH Genetic and Rare Diseases (GARD) Information Center
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