These inspiring individuals with Visual Snow Syndrome have shared their experiences and how they manage its symptoms.
Visual Snow Warrior of the Week – Khaled Al Refai
Meet Khaled, our #WarriorOfTheWeek, & hear his #VSS story. ???
Visual Snow Warrior of the Week – Julia Poetain
Hear from our strong #WarriorOfTheWeek, Julia, & her inspiring #VSS story. ?
Visual Snow Warrior of the Week – Chris Taylor
Meet our #WarriorOfTheWeek, Chris! Read about this awesome photographer’s #VSS story. ??
Visual Snow Warrior of the Week – Emre Guenan
Introducing our #WarriorOfTheWeek, Emre! Hear about how he developed #VSS at a young age and how he reminds himself to…
Visual Snow Warrior of the Week – Estrella Clavijo
Meet Estrella, our next #WarriorOfTheWeek! Hear about how she found out she had #VisualSnow and her fight to stay strong…
Visual Snow Warrior of the Week – Sasha Stevenson
Hear Sasha’s inspiring #VSS story of being diagnosed with #VSS but continuing to push through to receive her postgraduate certification…
Visual Snow Warrior of the Week – Adriane Souza
Introducing our next #WarriorOfTheWeek, Adriane! Hear how #VisualSnowSyndrome has affected her and learn her secret in how she copes with…
Visual Snow Warrior of the Week – Lucy Aviles
Meet Lucy, our #WarriorOfTheWeek! Hear her story about dealing with her condition, what helps alleviate symptoms, and her hope for…
Visual Snow Warrior of the Week – Joseph Molnar
Meet Joseph, our #WarriorOfTheWeek! Learn how #VisualSnowSyndrome symptoms affect Joseph’s life yet how optimistic he is for a cure. ?
Visual Snow Warrior of the Week – Patrick William
Introducing our #WarriorOfTheWeek! Hear Patrick’s unique story of how he deals with #VisualSnow and how he uses spiritual teachings and learning to expand…
Share Your Story
The Visual Snow Initiative highlights the experiences of individuals of all ages worldwide who have Visual Snow Syndrome.
Latest Research Articles
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Exploring Visual Snow Syndrome, Life, and Art: A Conversation with Nwando Ebizie and Visual Snow Initiative
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How Mindfulness-Based Therapy (MBCT-vision) May Help People with Visual Snow Syndrome | New Insights from Scientific Research
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How the Brain Filters Distractions: Cognitive Reorientation and Neural Adaptation in Visual Snow Syndrome
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Electroencephalographic Resting-State Microstates are Unstable in Visual Snow Syndrome
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Updated from VSS Researchers: Medication Study Delayed Due to Swiss Regulatory Requirements
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Long COVID and Visual Dysfunction: Exploring Visual Snow Symptoms and Neuro-Optometric Findings
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