These inspiring individuals with Visual Snow Syndrome have shared their experiences and how they manage its symptoms.
Eedit Hämäläinen
Hello! My name is Eedit, I’m 19 years old and I live in Finland. I have suffered from VSS since…
Mikayla Corrie-Muller
I’m a 21-year-old university student living with Visual Snow Syndrome (VSS) and chronic migraines. My journey to discovering I had VSS started…
Jennifer Bell
I’ve experienced Visual Snow for as long as I can remember. The constant overlay of moving, colorful dots has been…
Ava Baker
Hi! My name is Ava Baker, I am a 19 years old and from Orange County, California. I am currently…
Jasmine Shepard
When I was 11, I saw a video on TikTok mentioning that some people see static in their vision 24/7,…
Anabella Moceri
Hi! My name is Bella, and I live in the United States. I am 21 years old, and my experience…
Kevin and Sophie
My name is Kevin, and I’m a designer, a gamer, and a proud parent of an amazing daughter named Sophie.…
Debora Serafino
Hello! My name is Debora, I’m 22 years old, and I come from Italy. I don’t think I was born…
Nicholas
I am honored to share my story with the Visual Snow Initiative community, in hopes that it helps others who…
Maya Toadere
Hello, my name is Maya, I’m 16 years old, and I’m from Romania. I don’t know exactly when it all…
Share Your Story
The Visual Snow Initiative highlights the experiences of individuals of all ages worldwide who have Visual Snow Syndrome.
You Are All Our Superheroes!
We’d love to hear about your adventure with VSS — your story might help another kid out there!
Latest Research Articles
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New Research Explores Somatosensory Processing in Visual Snow Syndrome
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Visual Snow Syndrome Is Now Featured on the NIH Genetic and Rare Diseases (GARD) Information Center
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New Research Explores the Connection Between Yayoi Kusama and Visual Snow Syndrome
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Visual Snow Initiative and Founder Emeritus Sierra Domb Featured in CNBC Cures
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New Visual Snow Simulator App Developed by Peter Szigeti
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New Study Examines Whether Lumbar Punctures Are Necessary in Visual Snow Syndrome
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