These inspiring individuals with Visual Snow Syndrome have shared their experiences and how they manage its symptoms.
Milena
Three weeks ago, I picked up my phone and realized something was wrong with my eyes. I could see the…
Mykola Senyk
Hey! My name is Mykola, I am 21 years old, and I am Ukrainian. I have been suffering from Visual…
Florian Gunacker
When I was 15, my father died of a heart attack, and after that, I fell into a depression. When…
Drey Thrower
I’ve been living with VSS for six months now! Prior to waking up with all of my visual disturbances, I…
Eve Dyson
Hi, my name is Eve, and I’m from Sydney, Australia. When I was 9 years old, I told my parents…
Adam Calcaterra
I still remember the moment so vividly, when my reality changed. What was seemingly an unremarkable summer evening at 19…
Sunni
When I was a child, I’d look up at the ceiling on my sleepless nights and see millions of tiny…
Ludovic Beghin
I developed visual snow more than one year ago, out of nowhere. Never really understood what triggered it, which was…
Alexander Wark Feeney
I’ve been dealing with visual snow my whole life. Growing up, I would get scolded for squinting to see things…
Nirali Patel
Up until 2020, life had been proceeding without any significant hitches. Then, the world was thrust into the challenges brought…
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The Visual Snow Initiative highlights the experiences of individuals of all ages worldwide who have Visual Snow Syndrome.
You Are All Our Superheroes!
We’d love to hear about your adventure with VSS — your story might help another kid out there!
Latest Research Articles
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Visual Snow Initiative Founder, Sierra Domb, Interviewed by Bold Journey Magazine
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Assessment of a novel patient reported outcome measure for visual snow syndrome: the Colorado visual snow survey 2.0
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Visual Snow Syndrome and Migraine with Aura: Insights from New Research on Distinct Migraine Types
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Dr. Alexander Baldwin Awarded CIHR Grant for Visual Snow Syndrome Research with Support from Visual Snow Initiative
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Exploring the Phenotype and Possible Mechanisms of Palinopsia in Visual Snow Syndrome
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Visual Snow Initiative Roundtable: Global Visual Snow Syndrome Experts Unite to Discuss Ongoing Research Findings, Explore Potential Treatments, and Build Resources for VSS
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